ArticleScience (New York, N.Y.)2022
Data sharing and community-engaged research.
Article in Science (New York, N.Y.), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
22 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Bridging the gap between evidence and clinical practice for migraine headaches: a systematic review (2019-2024).The journal of headache and pain · 2025Pooled it
- "It didn't feel like anything unusual because we had already been through so much": Disability-related research experiences of families with children enrolled in the undiagnosed diseases network.Genetics in medicine : official journal of the American College of Medical Genetics · 2026Article
- Participant Perspectives on Data Sharing in Clinical Craniofacial Research: Qualitative Interviews With Participants With Craniofacial Microsomia and Their Caregivers.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2026Article
- Navigating data sharing in research.American journal of human genetics · 2026Review
- Autism data sharing: Benefits, challenges, and recommendations.PLOS digital health · 2026Review
- "It is important to me to know where the information is going": Views of adults with intellectual disability on data sharing in precision medicine research.Genetics in medicine open · 2026Article
- Towards trustworthiness of precision medicine research for people with disabilities.Nature genetics · 2025Article
- Ethical Frameworks for Data-Driven Environmental Health Studies in the AI Era.Environment & health (Washington, D.C.) · 2025Article
- Navigating sexual orientation and gender identity data privacy concerns in United States genetics practices.Journal of genetic counseling · 2025Article
- Consideration and Disclosure of Group Risks in Genomics and Other Data-Centric Research: Does the Common Rule Need Revision?The American journal of bioethics : AJOB · 2025Article
- Recent advances in the bench-to-bedside translation of cancer nanomedicines.Acta pharmaceutica Sinica. B · 2025Review
- Can Open Science Advance Health Justice? Genomic Research Dissemination in the Evolving Data-Sharing Landscape.The Hastings Center report · 2024Article
- Designing for data sharing: Considerations for advancing health equity in data management and dissemination.Translational behavioral medicine · 2024Article
- Real-World-Time Data and RCT Synergy: Advancing Personalized Medicine and Sarcoma Care through Digital Innovation.Cancers · 2024Review
- A data-driven approach to choosing privacy parameters for clinical trial data sharing under differential privacy.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Breaking the silence of sharing data in medical research.PloS one · 2024Article
- Caribbean data-sharing initiatives: activities of the Eastern Caribbean Health Outcomes Research Network.Revista panamericana de salud publica = Pan American journal of public health · 2024Article
- Public attitudes towards genomic data sharing: results from a provincial online survey in Canada.BMC medical ethics · 2023Article
- Re-envisioning community genetics: community empowerment in preventive genomics.Journal of community genetics · 2023Article
- Openness in Scientific Research: A Historical and Philosophical Perspective.Journal of open access to law · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
Data sharing must be accompanied by responsibility sharing.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.