ReviewNature communications2022
Key considerations to reduce or address respondent burden in patient-reported outcome (PRO) data collection.
Review in Nature communications, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 98 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
98 citing papers in PubMed, 1 synthesis or guideline pooled it, 157 citations in OpenAlex.
- Needs-based triggers for timely referral to palliative care for older adults severely affected by noncancer conditions: a systematic review and narrative synthesis.BMC palliative care · 2023Pooled it
- Feasibility of a Virtual Mindfulness-Based Stress Reduction Intervention for Individuals With Chronic Pain: Pilot Randomized Controlled Trial.JMIR formative research · 2026Trial
- Virtual Reality Interventions of Daily Versus Weekly Data Collection in Patient-Reported Outcomes Among Adults With Cancer: Pilot Survey Study.JMIR formative research · 2025Trial
- Patients with axial spondyloarthritis reported willingness to use remote care and showed high adherence to electronic patient-reported outcome measures: an 18-month observational study.Rheumatology international · 2024Trial
- Patient adherence and response time in electronic patient-reported outcomes: insights from three longitudinal clinical trials.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Trial
- The frequency of negative automatic thoughts may predict near-term suicide attempt in high-risk patients.Journal of psychiatric research · 2026Article
- Using Pre-Study Patient Interviews to Refine Electronic Patient-Reported Outcomes in Clinical Research of Ustekinumab Induction for Ulcerative Colitis (SIRIUS Study).Advances in therapy · 2026Article
- Research Study Attrition and Participant-Informed Retention Strategies Among Cancer Survivors.JAMA network open · 2026Article
- Real-world implementation of electronic patient-reported outcome measures (ePROMs) in routine oncology practice: a scoping review.ESMO real world data and digital oncology · 2026Review
- Use of a Checkbox Format for Electronic Remote Symptom Monitoring After Surgery.JCO oncology practice · 2026Article
- AI-based augmentation of oncology clinical trials.Nature reviews. Clinical oncology · 2026Review
- Recommendations for the use of clinical outcome assessments in rare disease drug development.EClinicalMedicine · 2026Review
- A FeAsibility items Checklist for assessing implementation characTeristics of patient-reported Outcome measures in Research, Regulation and Routine clinical care (FACTOR3): Development and evaluation.Clinical medicine (London, England) · 2026Article
- Early post-hospital trajectories of health-related quality of life for younger adult patients with traumatic brain injury.Archives of physical medicine and rehabilitation · 2026Article
- Gaps in patient-reported outcome measures integration into the management of lower urinary tract symptoms attributed to benign prostatic hyperplasia (LUTS/BPH): qualitative insights for implementation strategies.Journal of patient-reported outcomes · 2026Article
- Lessons learned from longitudinal biomonitoring and birth cohort studies: informing the future of reproductive health research in Canada.Environmental health : a global access science source · 2026Article
- Comparative multidimensional psychosocial profiles of major depressive disorder patients with higher versus lower anhedonia burden: a cross-sectional study.BMC psychiatry · 2026Article
- Feasibility of Knee PROMs in Older Chinese Population: A Cross-Sectional Comparative Study of WOMAC, KOOS, and OKS.Health science reports · 2026Article
- Measurement properties of the Patient Health Questionnaire 15 (PHQ-15) and Somatic Symptom Disorder B-criteria scale (SSD-12), including revised 1-week versions.Scientific reports · 2026Article
- Client experience and owner-reported functional recovery after feline orthopedic surgery: A structural equation model of loyalty and recommendation intentions.Open veterinary journal · 2026Article
38 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors at 6 institutions in 3 countries.
Funding
Abstract
Patient-reported outcomes (PROs) are used in clinical trials to provide evidence of the benefits and risks of interventions from a patient perspective and to inform regulatory decisions and health policy. The collection of PROs in routine practice can facilitate monitoring of patient symptoms; identification of unmet needs; prioritisation and/or tailoring of treatment to the needs of individual patients and inform value-based healthcare initiatives. However, respondent burden needs to be carefully considered and addressed to avoid high rates of missing data and poor reporting of PRO results, which may lead to poor quality data for regulatory decision making and/or clinical care.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.