ArticleFrontiers in neurology2022
Experiences and needs of the caregivers of stroke survivors in Malaysia-A phenomenological exploration.
Article in Frontiers in neurology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
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Who cites it
19 citing papers in PubMed, 28 citations in OpenAlex.
- The association of social isolation and family structure on stroke-specific quality of life in a community-based study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Understanding the need and feasibility of a transitional care training program for family caregivers of geriatric stroke survivors.BMC nursing · 2026Article
- Article
- A comparative evaluation of ChatGPT and Gemini for stroke caregiver support: accuracy, safety, and response characteristics.Revista da Associacao Medica Brasileira (1992) · 2026Article
- Knowledge, Attitudes and Practice of Informal Caregivers of People Living With Stroke: A Scoping Review of Recent Literature.Journal of advanced nursing · 2026Article
- User Needs for an Artificial Intelligence-Empowered Basic Activities of Daily Living Training System After Stroke: A Qualitative Study.Journal of multidisciplinary healthcare · 2026Article
- Influencing factors and pathways of benefit finding in young and middle-aged patients with first-episode acute myocardial infarction and their spouses: a path analysis.Frontiers in psychology · 2026Article
- Exploring the caregiving perceptions and needs of family caregivers of older stroke patients: a descriptive qualitative study.International journal of qualitative studies on health and well-being · 2025Article
- Evolution of Stroke Care at Universiti Sains Malaysia Specialist Hospital, Malaysia (1983-2025): Progress, Challenges, and Future Directions.The Malaysian journal of medical sciences : MJMS · 2025Article
- Low-Tech Telemedicine Reduces Caregiver Burden and Improves Outcomes in Older Adults with Chronic Diseases: Results from a Prospective Study in Romania.Healthcare (Basel, Switzerland) · 2025Article
- A Narrative Review on Mobile Health (mHealth) App for Stroke Care and Rehabilitation Intervention for Malaysia.The Malaysian journal of medical sciences : MJMS · 2025Article
- Effects of caregiver readiness of relatives caring for stroke patients on their caregiver burden and burnout.Malawi medical journal : the journal of Medical Association of Malawi · 2025Article
- Explaining the multifaceted experiences of family caregivers of stroke survivors: a qualitative study in Iran.BMJ open · 2025Article
- Technology Use for Home-Based Stroke Rehabilitation in Switzerland From the Perspectives of Persons Living With Stroke, Informal Caregivers, and Therapists: Qualitative Interview and Focus Group Study.JMIR rehabilitation and assistive technologies · 2024Article
- Fear of disease progression, self-management efficacy, and family functioning in patients with breast cancer: a cross-sectional relationship study.Frontiers in psychology · 2024Article
- Developmental trajectory of care dependency in older stroke patients.Frontiers in neurology · 2024Article
- The Unmet Needs of Caregiving Skills, Support, Emotions, and Finances of Stroke Caregivers: A Multicenter Study.Cureus · 2023Article
- A mixed-methods study on the implementation of a mobile health application (mHealth app) for stroke caregivers in Malaysia: healthcare providers' perspective.Frontiers in neurology · 2023Article
- Understanding stroke caregiving in rural contexts: a qualitative study of family caregivers' cultural values, coping behaviors, and technology use.Frontiers in neurologyArticle
Corrections and comments
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Authors and funding
7 authors at 4 institutions in 2 countries.
Funding
Abstract
Introduction: Informal caregivers play a crucial role in supporting the activities of daily living, rehabilitation, and the road to recovery for stroke survivors. However, these informal caregivers are often reported as experiencing neglect and lack of recognition despite their primary contribution to stroke recovery. This study investigated the experiences of the caregivers of stroke survivors and access to stroke care in Malaysia. Method: This qualitative study with a phenomenological approach utilized in-depth interviews, including ten primary caregivers, one formal caregiver, and stroke healthcare providers as the participants. The interviews were done until the data saturation was achieved, and the data was analyzed using thematic analysis. Result: Three primary themes and 14 subthemes were identified from the interviews. The role of primary caregivers of stroke survivors had tremendous physical, mental and social impact on the caregivers. Caregivers had two primary needs. The need for information about comprehensive stroke care at home and the need for psychological support to themselves. The key internal driver for providing care was identified to be the motivation level of the stroke survivor and the external driver was identified to be the societal support with access to comprehensive stroke care. Conclusion: The role of informal caregivers becomes critical for continuum of stroke care. As caregivers take up the roles and responsibilities of those who contribute to stroke rehabilitation single-handedly soon after hospital discharge. Results of this study highlights the needs for providing systematic support to caregivers for engaging them in effective stroke care, particularly in the community. Stroke service providers, policy makers and program planners must be sensitized to empower caregivers of stroke survivors in effectively supporting stroke survivor in their family on the road of recovery.
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