Evidence map›Paper›PMID 36206007›Full record

ArticleJAMA health forum2022

Association Between State Regulations Supportive of Third-party Services and Likelihood of Assisted Living Residents in the US Dying in Place.

Emmanuelle Belanger, Nicole Rosendaal, Xiao Joyce Wang, Joan M Teno, David M Dosa, Pedro L Gozalo, Paula Carder, Kali S Thomas

Abstract read
In one paragraph

Article in JAMA health forum, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Article
  3. Do end-of-life outcomes differ by assisted living memory-care designation?Journal of the American Geriatrics Society · 2024
    Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Emmanuelle BelangerDepartment of Health Services, Policy & Practice, Brown University School of Public Health, Providence, Rhode Island.
Nicole RosendaalCenter for Gerontology and Healthcare Research, Brown University School of Public Health, Providence, Rhode Island.
Xiao Joyce WangCenter for Gerontology and Healthcare Research, Brown University School of Public Health, Providence, Rhode Island.
Joan M TenoDivision of General Internal Medicine and Geriatrics, Oregon Health & Science University, Portland.
David M DosaCenter for Gerontology and Healthcare Research, Brown University School of Public Health, Providence, Rhode Island.
Pedro L GozaloDepartment of Health Services, Policy & Practice, Brown University School of Public Health, Providence, Rhode Island.
Paula CarderInstitute on Aging, School of Public Health, Oregon Health and Science University-Portland State University, Portland.
Kali S ThomasDepartment of Health Services, Policy & Practice, Brown University School of Public Health, Providence, Rhode Island.

Funding

Do State Regulations Affect the Outcomes of Assisted Living Residents with Dementia?R01AG057746 · NIA · BROWN UNIVERSITY · PI THOMAS, KALI ST. MARIE · 2018 to 2020
$2.9M
Determinants of End-of-Life Care Experiences among Assisted Living Residents with Alzheimer's Disease and Related DementiaR01AG066902 · NIA · BROWN UNIVERSITY · PI BELANGER, EMMANUELLE · 2020 to 2023
$2.7M
NIA NIH HHS R01 AG057746NIA NIH HHS R01 AG066902
6 · The paper itself

Abstract

Importance: Older adults are increasingly residing in assisted living residences during their last year of life. The regulations guiding these residential care settings differ between and within the states in the US, resulting in diverse policies that may support residents who wish to die in place. Objective: To examine the association between state regulations and the likelihood of assisted living residents dying in place. The study hypothesis was that regulations supporting third-party services, such as hospice, increase the likelihood of assisted living residents dying in place. Design, Setting, and Participants: This retrospective cohort study combined data about assisted living residences in the US from state registries with an inventory of state regulations and administrative claims data. The study participants comprised 168 526 decedents who were Medicare beneficiaries, resided in 8315 large, assisted living residences (with ≥25 beds) across 301 hospital referral regions during the last 12 months of their lives, and died between 2017 and 2019. Descriptive analyses were performed at the state level, and 3-level multilevel models were estimated to examine the association between supportive third-party regulations and dying in place in assisted living residences. The data were analyzed from September 2021 to August 2022. Exposures: Supportive (vs "silent," ie, not explicitly mentioned in regulatory texts) state regulations regarding hospice care, private care aides, and home health services, as applicable to licensed/registered assisted living residences across the US. Main Outcomes and Measures: Presence in assisted living residences on the date of death. Results: The median (IQR) age of the 168 526 decedents included in the study was 90 (84-94) years. Of these, 110 143 (65.4%) were female and 158 491 (94.0%) were non-Hispanic White. Substantial variation in the percentage of assisted living residents dying in place was evident across states, from 18.0% (New York) to 73.7% (Utah). Supportive hospice and home health regulations were associated with a higher odds of residents dying in place (adjusted odds ratio [AOR], 1.38; 95% CI, 1.24-1.54; P < .001; and AOR, 1.21; 95% CI, 1.10-1.34; P < .001, respectively). In addition, hospice regulations remained significant in fully adjusted models (AOR, 1.46; 95% CI, 1.25-1.71). Conclusions and Relevance: The findings of this cohort study suggest that a higher percentage of assisted living residents died in place in US states with regulations supportive of third-party services. In addition, assisted living residents in licensed settings with regulations supportive of hospice regulations were especially likely to die in place.

Indexed as

Hospice CareTerminal CareAgedAged, 80 and overCohort StudiesFemaleHumansMaleMedicareRetrospective StudiesUnited States

Identifiers

PMID36206007
PMCPMC9547316

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.