ArticleBJPsych open2022
Stigma among UK family carers of people living with dementia.
Article in BJPsych open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
7 citing papers in PubMed, 11 citations in OpenAlex.
- Sequential mediation of social resources, affiliate stigma, loneliness, and positive aspects of caregiving among Chinese and Korean American dementia caregivers.International journal of nursing sciences · 2026Article
- The Impact of Caregiver Affiliate Stigma on the Psychosocial Well-Being of Caregivers of Individuals with Neurodegenerative Disorders: A Scoping Review.Healthcare (Basel, Switzerland) · 2024Article
- Affiliate Stigma among family caregivers of individuals with dementia in China: a cross-sectional study.Frontiers in public health · 2024Article
- Designing Inclusive Qualitative Research with Carers of People Living with Dementia: Methodological Insights.Healthcare (Basel, Switzerland) · 2023Article
- The Support Priorities of Older Carers of People Living with Dementia: A Nominal Group Technique Study.Healthcare (Basel, Switzerland) · 2023Article
- Development of a Japanese version of the Family Stigma Instrument for dementia.Alzheimer's & dementia (Amsterdam, Netherlands)Article
- The vicious cycle of stigma: A multi-level analysis of dementia help seeking and care in Malaysia.Alzheimer's & dementia (Amsterdam, Netherlands)Article
Corrections and comments
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Authors and funding
5 authors at 4 institutions in 1 country.
Funding
Abstract
backgroundModels of caregiving seldom include the role of stigma when understanding the experiences of carers of people living with dementia.
aimsTo investigate the validity of the Family Stigma Instrument (FAMSI), and use it to explore the extent to which experiences of stigma are endorsed in family carers of people living with dementia.
methodThe FAMSI was tested with 70 carers of people living with dementia. They also completed a measure of self-esteem.
resultsThe FAMSI demonstrated some good preliminary psychometric properties. Carers endorsed stigma by association more so than affiliate stigma constructs, suggesting that carers were aware that others viewed or treated them in a stigmatising fashion but did not endorse internalised consequences of this as much (e.g. behavioural or affective affiliate stigma).
conclusionsThe FAMSI offers new avenues for understanding the contribution of stigma to caregiver burden in dementia. It also captures the positive aspects of caregiving, which may mitigate internalised stigma in family carers, and has good potential for evaluating stigma-neutralising interventions in dementia care.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.