Evidence map›Paper›PMID 36195343›Full record

ArticleCMAJ open

Codevelopment and usability testing of Patient Engagement 101: a Patient-Oriented Research Curriculum in Child Health e-learning module for health care professionals, researchers and trainees.

Catharine M Walsh, Nicola L Jones, Graham A McCreath, Veronik Connan, Linda Pires, Lama Abuloghod, Francine Buchanan, Colin Macarthur

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in CMAJ open. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed.

  1. Trial
  2. Review
  3. Impact of a Health Research Training Program on Patient and Community Partners, and Researchers: A Qualitative Evaluation.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  4. The Many Faces of Engagement: A Scoping Review of Paediatric Patient and Family Engagement in Clinical Care, Education and Research.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Catharine M WalshDivision of Gastroenterology, Hepatology and Nutrition (Walsh, Jones), Department of Clinical Dietetics (Connan), SickKids Learning Institute (Walsh), SickKids Research Institute (Walsh, Jones, McCreath, Abuloghod, Macarthur) and Canadian Child Health Clinician Scientist Program (Pires), The Hospital for Sick Children (Walsh, Jones, McCreath, Abuloghod, Buchanan, Macarthur); Departments of Paediatrics (Walsh, Jones, Macarthur) and Physiology (Jones), and The Wilson Centre for Research in Education (Walsh), Temerty Faculty of Medicine (Walsh, Jones, Macarthur); Institute of Health Policy, Management, and Evaluation (Walsh, Buchanan), University of Toronto, Toronto, Ont. catharine.walsh@utoronto.ca.
Nicola L JonesDivision of Gastroenterology, Hepatology and Nutrition (Walsh, Jones), Department of Clinical Dietetics (Connan), SickKids Learning Institute (Walsh), SickKids Research Institute (Walsh, Jones, McCreath, Abuloghod, Macarthur) and Canadian Child Health Clinician Scientist Program (Pires), The Hospital for Sick Children (Walsh, Jones, McCreath, Abuloghod, Buchanan, Macarthur); Departments of Paediatrics (Walsh, Jones, Macarthur) and Physiology (Jones), and The Wilson Centre for Research in Education (Walsh), Temerty Faculty of Medicine (Walsh, Jones, Macarthur); Institute of Health Policy, Management, and Evaluation (Walsh, Buchanan), University of Toronto, Toronto, Ont.
Graham A McCreathDivision of Gastroenterology, Hepatology and Nutrition (Walsh, Jones), Department of Clinical Dietetics (Connan), SickKids Learning Institute (Walsh), SickKids Research Institute (Walsh, Jones, McCreath, Abuloghod, Macarthur) and Canadian Child Health Clinician Scientist Program (Pires), The Hospital for Sick Children (Walsh, Jones, McCreath, Abuloghod, Buchanan, Macarthur); Departments of Paediatrics (Walsh, Jones, Macarthur) and Physiology (Jones), and The Wilson Centre for Research in Education (Walsh), Temerty Faculty of Medicine (Walsh, Jones, Macarthur); Institute of Health Policy, Management, and Evaluation (Walsh, Buchanan), University of Toronto, Toronto, Ont.
Veronik ConnanDivision of Gastroenterology, Hepatology and Nutrition (Walsh, Jones), Department of Clinical Dietetics (Connan), SickKids Learning Institute (Walsh), SickKids Research Institute (Walsh, Jones, McCreath, Abuloghod, Macarthur) and Canadian Child Health Clinician Scientist Program (Pires), The Hospital for Sick Children (Walsh, Jones, McCreath, Abuloghod, Buchanan, Macarthur); Departments of Paediatrics (Walsh, Jones, Macarthur) and Physiology (Jones), and The Wilson Centre for Research in Education (Walsh), Temerty Faculty of Medicine (Walsh, Jones, Macarthur); Institute of Health Policy, Management, and Evaluation (Walsh, Buchanan), University of Toronto, Toronto, Ont.
Linda PiresDivision of Gastroenterology, Hepatology and Nutrition (Walsh, Jones), Department of Clinical Dietetics (Connan), SickKids Learning Institute (Walsh), SickKids Research Institute (Walsh, Jones, McCreath, Abuloghod, Macarthur) and Canadian Child Health Clinician Scientist Program (Pires), The Hospital for Sick Children (Walsh, Jones, McCreath, Abuloghod, Buchanan, Macarthur); Departments of Paediatrics (Walsh, Jones, Macarthur) and Physiology (Jones), and The Wilson Centre for Research in Education (Walsh), Temerty Faculty of Medicine (Walsh, Jones, Macarthur); Institute of Health Policy, Management, and Evaluation (Walsh, Buchanan), University of Toronto, Toronto, Ont.
Lama AbuloghodDivision of Gastroenterology, Hepatology and Nutrition (Walsh, Jones), Department of Clinical Dietetics (Connan), SickKids Learning Institute (Walsh), SickKids Research Institute (Walsh, Jones, McCreath, Abuloghod, Macarthur) and Canadian Child Health Clinician Scientist Program (Pires), The Hospital for Sick Children (Walsh, Jones, McCreath, Abuloghod, Buchanan, Macarthur); Departments of Paediatrics (Walsh, Jones, Macarthur) and Physiology (Jones), and The Wilson Centre for Research in Education (Walsh), Temerty Faculty of Medicine (Walsh, Jones, Macarthur); Institute of Health Policy, Management, and Evaluation (Walsh, Buchanan), University of Toronto, Toronto, Ont.
Francine Buchanan *Division of Gastroenterology, Hepatology and Nutrition (Walsh, Jones), Department of Clinical Dietetics (Connan), SickKids Learning Institute (Walsh), SickKids Research Institute (Walsh, Jones, McCreath, Abuloghod, Macarthur) and Canadian Child Health Clinician Scientist Program (Pires), The Hospital for Sick Children (Walsh, Jones, McCreath, Abuloghod, Buchanan, Macarthur); Departments of Paediatrics (Walsh, Jones, Macarthur) and Physiology (Jones), and The Wilson Centre for Research in Education (Walsh), Temerty Faculty of Medicine (Walsh, Jones, Macarthur); Institute of Health Policy, Management, and Evaluation (Walsh, Buchanan), University of Toronto, Toronto, Ont.
Colin Macarthur *Division of Gastroenterology, Hepatology and Nutrition (Walsh, Jones), Department of Clinical Dietetics (Connan), SickKids Learning Institute (Walsh), SickKids Research Institute (Walsh, Jones, McCreath, Abuloghod, Macarthur) and Canadian Child Health Clinician Scientist Program (Pires), The Hospital for Sick Children (Walsh, Jones, McCreath, Abuloghod, Buchanan, Macarthur); Departments of Paediatrics (Walsh, Jones, Macarthur) and Physiology (Jones), and The Wilson Centre for Research in Education (Walsh), Temerty Faculty of Medicine (Walsh, Jones, Macarthur); Institute of Health Policy, Management, and Evaluation (Walsh, Buchanan), University of Toronto, Toronto, Ont.

Funding

CIHR 397481
6 · The paper itself

Abstract

backgroundPatient and family engagement is thought to improve the quality and relevance of child health research. We developed and evaluated the usability of Patient Engagement 101, an e-learning module designed to strengthen the patient-oriented research readiness of health care professionals, researchers, trainees and other stakeholders.

methodsThe development of Patient Engagement 101 was co-led by a parent and a researcher and overseen by a diverse multistake-holder steering committee. The module was refined and evaluated using a mixed-methods usability testing approach with 2 iterative cycles of semistructured interviews, observations and questionnaires. We collected module feedback by way of semistructured interviews, the validated System Usability Scale, and satisfaction, knowledge and confidence questionnaires. Thematic coding of transcripts and field notes, informed by team discussions, guided the module revisions.

resultsThirty end-users completed usability testing (15 per cycle). In each cycle, we modified the module with respect to its content, learner experience, learner-centred design and aesthetic design. Participants were highly satisfied, and System Usability Scale scores indicated the module had the best imaginable usability. Substantial increases in the participants' knowledge test scores and the confidence to engage in patient-oriented research, but not self-rated knowledge, were observed after module completion.

interpretationCodevelopment with patients and caregivers, and refinement through comprehensive end-user testing, resulted in a training resource with exceptional usability that improved knowledge and confidence to engage in patient-oriented research in child health. Patient Engagement 101 is openly available online, and the methods used to develop and evaluate it may facilitate the creation and evaluation of similar capacity-building resources.

Indexed as

Computer-Assisted InstructionUser-Centered DesignChildChild HealthCurriculumHealth PersonnelHumansPatient ParticipationUser-Computer Interface

Identifiers

PMID36195343
PMCPMC9544233

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.