ArticleJournal of medical Internet research2022
Exploring Social Support in an Online Support Community for Tourette Syndrome and Tic Disorders: Analysis of Postings.
Article in Journal of medical Internet research, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed, 23 citations in OpenAlex.
- A Cross-Sectional Study Utilizing Online Support Communities for Tic Disorders: the Association between Participation Duration and Quality of Life in Children with Tic Disorders and Their Caregivers.European journal of pediatrics · 2026Article
- Beyond the Tics: Experiences of Stigma and Psychosocial Impact in Tourette Syndrome.Child psychiatry and human development · 2026Article
- Exploring Empowerment in Online Support Communities for People Living With Tic Disorders and Tourette Syndrome: Qualitative Survey Study of User Experiences.JMIR formative research · 2025Article
- Reframing stigma in Tourette syndrome: an updated scoping review.European child & adolescent psychiatry · 2025Article
- The Association Between Linguistic Characteristics of Physicians' Communication and Their Economic Returns: Mixed Method Study.Journal of medical Internet research · 2024Article
- The psychological impact of the secondary school transition on families of autistic children.International journal of developmental disabilities · 2024Article
- Study protocol for measuring stigmatization in persistent tic disorders: development and validation of the Tourette discrimination-stigmatization scale.Frontiers in psychology · 2024Article
- How People with Physical Disabilities Can Obtain Social Support through Online Videos: A Qualitative Study in China.International journal of environmental research and public health · 2023Article
Corrections and comments
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Authors and funding
3 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundOnline support communities have become an accessible way of gaining social, emotional, and informational support from peers and may be particularly useful for individuals with chronic conditions. To date, there have been few studies exploring the online support available for tic disorders, such as Tourette syndrome. An exploratory study looking at users' experiences with using online support communities for tic disorders suggested that members used such communities to share experiences, information, and strategies for tic management.
objectiveTo build on these preliminary findings, this study examined the provision of social support in an online community for Tourette syndrome.
methodsData were collected from one publicly available online support community for Tourette syndrome and tics, from its inception to December 2019, by randomly selecting 10% of posts and their corresponding comments from each year for analysis. This resulted in 510 unique posts and 3802 comments posted from 1270 unique usernames. The data were analyzed using inductive thematic analysis.
resultsThe findings of this study suggest that users utilized the online community as a multifaceted virtual place where they could share and ask for information about tics, unload and share their feelings arising from living with Tourette syndrome, find people facing similar situations and experiences, and freely share the realities of living with Tourette syndrome.
conclusionsThe results complement the findings from a preliminary study and suggest that online support communities have a potentially valuable role as a mechanism for sharing and gaining information on illness experiences from similar peers experiencing tics and can promote self-management of tics. Limitations and recommendations for future research are discussed.
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