ArticleFrontiers in rehabilitation sciences2022
Empowerment, Communication, and Navigating Care: The Experience of Persons With Spinal Cord Injury From Acute Hospitalization to Inpatient Rehabilitation.
Article in Frontiers in rehabilitation sciences, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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Who cites it
10 citing papers in PubMed.
- Operationalizing an early time-to-decompression best practice & monitoring approach in a provincial health system.Spinal cord · 2026Review
- Physiotherapy practice with mechanically ventilated spinal cord injury patients in the intensive care unit (ICU): A qualitative study of physiotherapists' experiences and perspectives.Clinical rehabilitation · 2026Article
- Design Recommendations for Virtual Reality-Based Upper Limb Exercises From People With Tetraplegia and Spinal Cord Injury Rehabilitation Specialists: Focus Group Study.JMIR rehabilitation and assistive technologies · 2026Article
- A pilot randomised controlled trial of the Spinal Cord Injury and You (SCI&U) online peer health coaching self-management program.Pilot and feasibility studies · 2026Article
- Bridging the gap: The experiences and needs of people with spinal cord injury when transitioning out of inpatient rehabilitation.The South African journal of physiotherapy · 2026Article
- Optimizing patient understanding of spine MRI reports using AI: A prospective single center study.Interventional pain medicine · 2025Article
- Enduring benefits of exercise after spinal cord injury: Insights from a case study.African journal of disability · 2025Article
- Patient-Provider Communication in Spinal Cord Injury: A Scoping Review and Call for Further Research.Topics in spinal cord injury rehabilitation · 2025Article
- Measures for Persons with Spinal Cord Injury to Monitor Their Transitions in Care, Health, Function, and Quality of Life Experiences and Needs: A Protocol for Co-Developing a Self-Evaluation Tool.Healthcare (Basel, Switzerland) · 2024Article
- Can Large Language Models Answer Questions about Spinal Cord Injury? Risks, Challenges, and Opportunities-A Narrative Review.Neurotrauma reportsReview
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: Spinal cord injury (SCI) results in long-term functional impairments that significantly impact participation and role in the community. Newly injured persons are often reintroduced to the community with significant deficits in knowledge, including how to access and navigate community resources and supports. This warrants a better understanding of the patient experience of in-hospital care and discharge planning to ensure individuals with SCI are best supported during transitions in care and while living in the community. Objective: To explore the lived experience of persons with acute SCI and their perceptions of care, focusing on the initial hospital experiences to inpatient rehabilitation. Methods: A phenomenological research study was conducted using semi-structured interviews. Eligible participants had differing etiologies of SCI (including non-traumatic and traumatic SCI), were over the age of 18 at the time of initial care, and experienced acute hospital and inpatient rehabilitation at an Alberta-based institution within the last 10 years. One-on-one interviews took place between March and June 2021 over telephone or virtual platforms (Zoom). Interview transcripts, and field notes developed the text, which underwent hermeneutic analysis to develop central themes. Results: The present study included 10 participants living with an SCI in Alberta, Canada. Most participants (80%) were male. Participants' age ranged from 24 to 69 years. The median years since initial SCI was 3 years. Interviews lasted 45-75 min. Seven participants identified as having a traumatic SCI injury and three identified as having a non-traumatic SCI. The interplay between empowerment and disempowerment emerged as the core theme, permeating participants' meanings and perceptions. Three main themes emerged from the interviews regarding the perceptions of the SCI patient experience. Each theme represents a perception central to their inpatient experience: Conclusion: This study demonstrates the significant need to enhance education of person/family-centered SCI care, foster positive communication between care recipients and care providers, and facilitate better in-hospital access to appropriate navigation and wayfinding supports.
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