Evidence map›Paper›PMID 36185769›Full record

ArticleGlobal bioethics = Problemi di bioetica2022

Epistemic justice, African values and feedback of findings in African genomics research.

Cornelius Ewuoso, Ambroise Wonkam, Jantina de Vries

Abstract read
In one paragraph

Article in Global bioethics = Problemi di bioetica, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Article
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  7. Decolonial health literature can increase our thinking about ethics dumping.Journal of medical ethics and history of medicine · 2023
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Cornelius EwuosoSteve Biko Centre for Bioethics, University of Witwatersrand, Johannesburg, South Africa.ORCID https://orcid.org/0000-0001-7219-5554
Ambroise WonkamDivision of Human Genetics, University of Cape Town, Cape Town, South Africa.
Jantina de VriesDepartment of Medicine, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa.ORCID https://orcid.org/0000-0001-7192-2633

Funding

Return of a Fragile X Syndrome genetic result: exploring the feedback of individual genetic findings and their relation to traditional knowledge in a village in Cameroon.U54HG009790 · NHGRI · UNIVERSITY OF CAPE TOWN · PI DE VRIES, JANTINA, WONKAM, AMBROISE · 2017 to 2021
$2.5M
Public Understanding of Big data in Genomics Medicine in Africa (PUBGEM-Africa)U01MH127692 · NIMH · UNIVERSITY OF CAPE TOWN · PI MUNUNG, NCHANGWI SYNTIA, WONKAM, AMBROISE · 2021 to 2025
$1.9M
NHGRI NIH HHS U54 HG009790NIMH NIH HHS U01 MH127692
6 · The paper itself

Abstract

This article draws on key normative principles grounded in important values - solidarity, partiality and friendliness - in African philosophy to think critically and deeply about the ethical challenges around returning individual genetic research findings in African genomics research. Precisely, we propose that the normative implication of solidarity, partiality and friendliness is that returning findings should be considered as a gesture of goodwill to participants to the extent that it constitutes acting for their well-being. Concretely, the value of friendliness may imply that one ought to return actionable results to participants even when their preferences regarding feedback are unknown. Notwithstanding, returning individual genetic results will have a cost implication. The cost of feeding back is relevant in the context of African genomics research projects, which are often funded by international sponsors and should be researched further.

Indexed as

African genomics researchAfrican philosophyfriendlinesspartialitysolidarity

Identifiers

PMID36185769
PMCPMC9518233

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.