Evidence map›Paper›PMID 36182898›Full record

ArticlePediatric rheumatology online journal2022

Transitioning patients with juvenile idiopathic arthritis to adult care: the Nordic experience.

Katriina Mikola, Katariina Rebane, Ellen Dalen Arnstad, Lillemor Berntson, Anders Fasth, Mia Glerup, Troels Herlin, Hannu Kautiainen, Susan Nielsen, Ellen Nordal and 5 more

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In one paragraph

Article in Pediatric rheumatology online journal, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Review
  4. Article
  5. Article
  6. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Katriina MikolaNew Children's Hospital, Pediatric Research Center, University of Helsinki and Helsinki University Hospital, Stenbackinkatu 9, 00290, Helsinki, Finland. Katriina.Mikola@hus.fi.ORCID http://orcid.org/0000-0002-8262-3636
Katariina RebaneNew Children's Hospital, Pediatric Research Center, University of Helsinki and Helsinki University Hospital, Stenbackinkatu 9, 00290, Helsinki, Finland.
Ellen Dalen ArnstadDepartment of Pediatrics, Levanger Hospital, Nord-Trøndelag Hospital Trust, Levanger, Norway.
Lillemor BerntsonDepartment of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
Anders FasthDepartment of Pediatrics, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
Mia GlerupDepartment of Pediatrics, Aarhus University Hospital, Aarhus, Denmark.
Troels HerlinDepartment of Pediatrics, Aarhus University Hospital, Aarhus, Denmark.
Hannu KautiainenKuopio University Hospital, Primary Health Care Unit Kuopio, Pohjois-Savo, Finland.
Susan NielsenDepartment of Pediatrics, Rigshospitalet Copenhagen University Hospital, Copenhagen, Denmark.
Ellen NordalDepartment of Pediatrics, University Hospital of North Norway and Pediatric Research Group, Tromsø, Norway.
Suvi PeltoniemiHelsinki University Central Hospital, HUS Inflammation Center, Rheumatology and University of Helsinki, Helsinki, Finland.
Marite RyggDepartment of Clinical and Molecular Medicine, NTNU - Norwegian University of Science and Technology, Trondheim, Norway.
Veronika RypdalDepartment of Pediatrics, University Hospital of North Norway and Pediatric Research Group, Tromsø, Norway.
Marek ZakDepartment of Pediatrics, Rigshospitalet Copenhagen University Hospital, Copenhagen, Denmark.
Kristiina AaltoNew Children's Hospital, Pediatric Research Center, University of Helsinki and Helsinki University Hospital, Stenbackinkatu 9, 00290, Helsinki, Finland.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundWith juvenile idiopathic arthritis (JIA), there are several protocols and practices used worldwide for the transition from paediatric to adult care. In this study, we examined the transferral rates and disease activity after transition, as well as the disease- and health-related outcomes. We also introduce the transition practices employed in the Nordic countries.

methodsThe study population comprised 408 participants with a disease onset from 1997 to 2000 who attended an 18-year follow-up visit in this population-based Nordic JIA cohort study. The patients were retrospectively divided into three subgroups: Patients transferred directly from paediatric care to adult rheumatology care, patients referred there later, and patients never transferred during the 18-year follow-up period.

resultsOne hundred and sixty-three (40%) JIA patients had been directly transferred to an adult clinic. The cumulative transition rate was 52%, but there were significant differences between the participating centres. Fifty patients had later been referred to an adult clinic. Among the 195 patients who had never been transferred, 39% were found to have disease activity at the study visit.

conclusionThis study highlights the need to reconsider transition practices to avoid our undesirable finding of patients with disease activity in JIA, but no appropriate health care follow-up.

Indexed as

Antirheumatic AgentsArthritis, JuvenileTransition to Adult CareAdultChildCohort StudiesHumansRetrospective StudiesAntirheumatic AgentsDisease activityFollow-up studyJuvenile idiopathic arthritisMulticentre studyRemissionTransitionUveitis

Identifiers

PMID36182898
PMCPMC9526898

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.