Evidence map›Paper›PMID 36173667›Full record

ArticleJMIR aging2022

A Social Media-Based Intervention for Chinese American Caregivers of Persons With Dementia: Protocol Development.

Y Alicia Hong, Kang Shen, Huixing Kate Lu, Hsiaoyin Chen, Yang Gong, Van Ta Park, Hae-Ra Han

Open access · goldAbstract read
In one paragraph

Article in JMIR aging, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
1.5field-weighted citation impact, top 18% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 10 citations in OpenAlex.

  1. Trial
  2. Article
  3. Review
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 5 institutions in 2 countries.

Y Alicia HongDepartment of Health Administration and Policy, College of Public Health, George Mason University, Fairfax, VA, United States.ORCID https://orcid.org/0000-0002-1481-6495
Kang ShenDepartment of Health Administration and Policy, College of Public Health, George Mason University, Fairfax, VA, United States.ORCID https://orcid.org/0000-0001-7216-3640
Huixing Kate LuChinese Culture and Community Service Center, Inc, Gaithersburg, MD, United States.ORCID https://orcid.org/0000-0002-5738-0345
Hsiaoyin ChenChinese Culture and Community Service Center, Inc, Gaithersburg, MD, United States.ORCID https://orcid.org/0000-0002-5666-2076
Yang GongSchool of Biomedical Informatics, University of Texas Health Science Center at Houston, Houston, TX, United States.ORCID https://orcid.org/0000-0002-0864-8368
Van Ta ParkDepartment of Community Health Systems, School of Nursing, University of California, San Francisco, San Francisco, CA, United States.ORCID https://orcid.org/0000-0001-5020-0359
Hae-Ra HanSchool of Nursing, Johns Hopkins University, Baltimore, MD, United States.ORCID https://orcid.org/0000-0002-9419-594X
Chinese Culture University · TWGeorge Mason University · USJohns Hopkins University · USThe University of Texas Health Science Center at Houston · USUniversity of California, San Francisco · US

Funding

Collaborative Approach for Asian Americans, Native Hawaiians, and Pacific Islanders Research and Education (CARE) 2.0R01AG083926 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Joshua Grill, Van My Ta Park · 2023 to 2026
$12.9M
COVID-19 Effects on the Mental and Physical Health of AAPI Survey Study (COMPASS) IIR24AG063718 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI PARK, VAN MY TA · 2019 to 2021
$4.4M
NIA NIH HHS R01 AG083926NIA NIH HHS R24 AG063718
6 · The paper itself

Abstract

backgroundRacial/ethnic minority and immigrant caregivers of persons with dementia experience high rates of psychosocial stress and adverse health outcomes. Few culturally tailored mobile health (mHealth) programs were designed for these vulnerable populations.

objectiveThis study reports the development of a culturally tailored mHealth program called Wellness Enhancement for Caregivers (WECARE) to improve caregiving skills, reduce distress, and improve the psychosocial well-being of Chinese American family caregivers of persons with dementia.

methodsCommunity-based user-centered design principles were applied in the program development. First, the structure and curriculum of the WECARE program were crafted based on existing evidence-based interventions for caregivers with input from 4 experts. Second, through working closely with 8 stakeholders, we culturally adapted evidence-based programs into multimedia program components. Lastly, 5 target users tested the initial WECARE program; their experience and feedback were used to further refine the program.

resultsThe resulting WECARE is a 7-week mHealth program delivered via WeChat, a social media app highly popular in Chinese Americans. By subscribing to the official WECARE account, users can receive 6 interactive multimedia articles pushed to their WeChat accounts each week for 7 weeks. The 7 major themes include (1) facts of dementia and caregiving; (2) the enhancement of caregiving skills; (3) effective communication with health care providers, care partners, and family members; (4) problem-solving skills for caregiving stress management; (5) stress reduction and depression prevention; (6) the practice of self-care and health behaviors; and (7) social support and available resources. Users also have the option of joining group chats for peer support. The WECARE program also includes a back-end database that manages intervention delivery and tracks user engagement.

conclusionsThe WECARE program represents one of the first culturally tailored social media-based interventions for Chinese American caregivers of persons with dementia. It demonstrates the use of community-based user-centered design principles in developing an mHealth intervention program in underserved communities. We call for more cultural adaptation and development of mHealth interventions for immigrant and racial/ethnic minority caregivers of persons with dementia.

Indexed as

agingAlzheimer diseasecaregiversChinese AmericansdementiamHealth interventionmobile healthsocial mediaWeChat

Identifiers

PMID36173667
PMCPMC9562087
OpenAlexW4298005150

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.