Evidence map›Paper›PMID 36164820›Full record

ArticleJournal of the American Medical Informatics Association : JAMIA2022

The evolving privacy and security concerns for genomic data analysis and sharing as observed from the iDASH competition.

Tsung-Ting Kuo, Xiaoqian Jiang, Haixu Tang, XiaoFeng Wang, Arif Harmanci, Miran Kim, Kai Post, Diyue Bu, Tyler Bath, Jihoon Kim and 3 more

Abstract read
In one paragraph

Article in Journal of the American Medical Informatics Association : JAMIA, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
  4. Article
  5. Descriptor:IEEE data descriptions · 2024
    Article
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  7. Article
  8. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Tsung-Ting KuoUCSD Health Department of Biomedical Informatics, University of California San Diego, La Jolla, California, USA.ORCID 0000-0002-8728-4477
Xiaoqian JiangSchool of Biomedical Informatics, The University of Texas Health Science Center at Houston, Houston, Texas, USA.ORCID 0000-0001-9933-2205
Haixu TangLuddy School of Informatics, Computing, and Engineering, Indiana University Bloomington, Bloomington, Indiana, USA.ORCID 0000-0001-8963-8155
XiaoFeng WangLuddy School of Informatics, Computing, and Engineering, Indiana University Bloomington, Bloomington, Indiana, USA.ORCID 0000-0002-0607-4946
Arif HarmanciSchool of Biomedical Informatics, The University of Texas Health Science Center at Houston, Houston, Texas, USA.
Miran KimDepartment of Mathematics, Hanyang University, Seoul, Republic of Korea.ORCID 0000-0003-3564-6090
Kai PostUCSD Health Department of Biomedical Informatics, University of California San Diego, La Jolla, California, USA.ORCID 0000-0003-1002-3989
Diyue BuLuddy School of Informatics, Computing, and Engineering, Indiana University Bloomington, Bloomington, Indiana, USA.
Tyler BathUCSD Health Department of Biomedical Informatics, University of California San Diego, La Jolla, California, USA.ORCID 0000-0003-2601-178X
Jihoon KimUCSD Health Department of Biomedical Informatics, University of California San Diego, La Jolla, California, USA.ORCID 0000-0002-5351-238X
Weijie LiuLuddy School of Informatics, Computing, and Engineering, Indiana University Bloomington, Bloomington, Indiana, USA.
Hongbo ChenLuddy School of Informatics, Computing, and Engineering, Indiana University Bloomington, Bloomington, Indiana, USA.
Lucila Ohno-MachadoUCSD Health Department of Biomedical Informatics, University of California San Diego, La Jolla, California, USA.ORCID 0000-0002-8005-7327

Funding

Genetic & Social Determinants of Health: Center for Admixture Science and TechnologyRM1HG011558 · NHGRI · YALE UNIVERSITY · PI FRAZER, KELLY A, GYMREK, MELISSA · 2021 to 2025
$11.2M
Protecting Privacy and Facilitating Shared Access of Clinical and Genetic Data of Special PopulationsR01HL136835 · NHLBI · YALE UNIVERSITY · PI OHNO-MACHADO, LUCILA · 2018 to 2022
$6.5M
iAGREE: A Multi-Center, Networked Patient Consent StudyR01HG011066 · NHGRI · YALE UNIVERSITY · PI OHNO-MACHADO, LUCILA · 2020 to 2024
$4.2M
Decentralized differentially-private methods for dynamic data release and analysisR01LM013712 · NLM · YALE UNIVERSITY · PI JIANG, XIAOQIAN, OHNO-MACHADO, LUCILA · 2022 to 2025
$2.5M
Decentralized differentially-private methods for dynamic data release and analysisR01GM118609 · NIGMS · UNIVERSITY OF CALIFORNIA, SAN DIEGO · PI JIANG, XIAOQIAN, OHNO-MACHADO, LUCILA · 2017 to 2020
$2.3M
Secure and Privacy-preserving Genome-wide and Phenome-wide Association Studies via Intel Software Guard Extensions (SGX)R01HG010798 · NHGRI · TRUSTEES OF INDIANA UNIVERSITY · PI TANG, HAIXU, WANG, XIAOFENG · 2019 to 2022
$1.4M
BECKON - Block Estimate Chain: creating Knowledge ON demand & protecting privacyR00HG009680 · NHGRI · UNIVERSITY OF CALIFORNIA, SAN DIEGO · PI KUO, TSUNG-TING · 2019 to 2021
$849k
SERGEANT: SEcuRe GEnome Analysis competitionR13HG009072 · NHGRI · UNIVERSITY OF CALIFORNIA, SAN DIEGO · PI JIANG, XIAOQIAN, OHNO-MACHADO, LUCILA · 2016 to 2019
$65k
NHGRI NIH HHS R00 HG009680NHGRI NIH HHS R01 HG010798NHGRI NIH HHS R01 HG011066NHGRI NIH HHS R13 HG009072NHGRI NIH HHS RM1 HG011558NHLBI NIH HHS R01 HL136835NIGMS NIH HHS R01 GM118609NLM NIH HHS R01 LM013712
6 · The paper itself

Abstract

Concerns regarding inappropriate leakage of sensitive personal information as well as unauthorized data use are increasing with the growth of genomic data repositories. Therefore, privacy and security of genomic data have become increasingly important and need to be studied. With many proposed protection techniques, their applicability in support of biomedical research should be well understood. For this purpose, we have organized a community effort in the past 8 years through the integrating data for analysis, anonymization and sharing consortium to address this practical challenge. In this article, we summarize our experience from these competitions, report lessons learned from the events in 2020/2021 as examples, and discuss potential future research directions in this emerging field.

Indexed as

Computer SecurityPrivacyData AnalysisGenomeGenomicscommunity effortgenome privacygenome securitygenomic data analysisgenomic data sharing

Identifiers

PMID36164820
PMCPMC9667175

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.