ReviewJournal of Alzheimer's disease : JAD2022
Dementia Research on Facebook and Twitter: Current Practice and Challenges.
Review in Journal of Alzheimer's disease : JAD, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
9 citing papers in PubMed.
- Pre-Exposure Prophylaxis-Related Messages Across Facebook, Instagram, and Twitter (Rebranded X): Content Analysis.Journal of medical Internet research · 2026Article
- Exploring #HealthLiteracy on LinkedIn: a first look at health hashtag engagement in a professional social media context.Frontiers in digital health · 2025Article
- Information quality assessment and content analysis of dementia prevention on WeChat: a cross-sectional study.Frontiers in public health · 2025Article
- Technology in Dementia Education: An Ethical Imperative in a Digitized World.Journal of Alzheimer's disease : JAD · 2024Article
- Analyzing public discourse of dementia from Spanish and English tweets: a comparative analysis with other neurological disorders.Frontiers in neurology · 2024Article
- Asian Americans' and Pacific Islanders' preferences in recruitment strategies and messaging for participation in the CARE registry: A discrete choice experiment.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2023Article
- Investigating the Readability and Linguistic, Psychological, and Emotional Characteristics of Digital Dementia Information Written in the English Language: Multitrait-Multimethod Text Analysis.JMIR formative research · 2023Article
- The quality of information provided by the most popular dementia videos on TikTok.Frontiers in public health · 2023Article
- Practical social media recommendations for dementia prevention researchers.Alzheimer's & dementia (New York, N. Y.)Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundSocial media is a powerful tool for engaging diverse audiences in dementia research. However, there is little data summarizing current content exchange in this context.
objectiveTo inform ethical dementia research engagement on social media, we characterized current practices by analyzing public social media posts.
methodsWe retrieved Facebook (2-year period, N = 7,896) and Twitter (1-year period, N = 9,323) posts containing dementia research-related keywords using manual and machine learning-based search strategies. We performed qualitative and quantitative content and sentiment analyses on random samples (10%) of the posts.
resultsTop Facebook users were advocacy (45%) and health organizations (25%). On Twitter, academics/researchers were the largest user group. Prevention was the most frequently coded theme (Facebook 30%; Twitter 26%), followed by treatment (Facebook 15%; Twitter 18%). Diagnostics had the highest Facebook engagement. Sharing knowledge was the primary form of content exchange (Facebook 63%; Twitter 80%). Most shared journal articles were peer-reviewed and open access. Emotional tone was overall more positive on Facebook. Justice was a prominent ethics topic regarding inequalities related to identity and intersecting modes of marginalization in dementia research.
conclusionThe findings indicate the importance of social media as an engagement tool of current topics in health research and reveal areas of potential for increased engagement. These data can inform consensus-based best practices for ethical social media application in dementia research.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.