Evidence map›Paper›PMID 36153439›Full record

ArticleSpinal cord2023

Australian arm of the International Spinal Cord Injury (Aus-InSCI) community survey: 1. population-based design, methodology and cohort profile.

James W Middleton, Mohit Arora, Annette Kifley, Timothy Geraghty, Samantha J Borg, Ruth Marshall, Jillian Clark, Andrew Nunn, Anna Ferrante, Christine Fekete and 4 more

Open access · hybridFull text read
PubMed Full text at PMC Publisher
In one paragraph

Article in Spinal cord, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
2.1field-weighted citation impact, top 13% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 14 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors at 7 institutions in 3 countries.

James W MiddletonJohn Walsh Centre for Rehabilitation Research, The Kolling Institute, Northern Sydney Local Health District, St Leonards, NSW, Australia. james.middleton@sydney.edu.au.ORCID 0000-0002-2777-8619
Mohit AroraJohn Walsh Centre for Rehabilitation Research, The Kolling Institute, Northern Sydney Local Health District, St Leonards, NSW, Australia.ORCID 0000-0003-1024-3682
Annette KifleyJohn Walsh Centre for Rehabilitation Research, The Kolling Institute, Northern Sydney Local Health District, St Leonards, NSW, Australia.ORCID 0000-0002-3764-4905
Timothy GeraghtyQueensland Spinal Cord Injuries Service, Division of Rehabilitation, Princess Alexandra Hospital, Brisbane, QLD, Australia.
Samantha J BorgQueensland Spinal Cord Injuries Service, Division of Rehabilitation, Princess Alexandra Hospital, Brisbane, QLD, Australia.
Ruth MarshallSouth Australian Spinal Cord Injury Service, Central Adelaide Local Health Network, Adelaide, SA, Australia.
Jillian ClarkSouth Australian Spinal Cord Injury Service, Central Adelaide Local Health Network, Adelaide, SA, Australia.
Andrew NunnVictorian Spinal Cord Service, Austin Health, Heidelberg, VIC, Australia.
Anna FerranteSchool of Population Health, Curtin University, Bentley, WA, Australia.
Christine FeketeSwiss Paraplegic Research, Guido A. Zäch Institute, Nottwil, Switzerland.ORCID 0000-0002-3753-3017
Gerold StuckiSwiss Paraplegic Research, Guido A. Zäch Institute, Nottwil, Switzerland.
Bamini GopinathJohn Walsh Centre for Rehabilitation Research, The Kolling Institute, Northern Sydney Local Health District, St Leonards, NSW, Australia.
Ashley CraigJohn Walsh Centre for Rehabilitation Research, The Kolling Institute, Northern Sydney Local Health District, St Leonards, NSW, Australia.ORCID 0000-0001-7647-7604
Ian D CameronJohn Walsh Centre for Rehabilitation Research, The Kolling Institute, Northern Sydney Local Health District, St Leonards, NSW, Australia.
The University of Sydney · AUCentral Adelaide Local Health NetworkGriffith University · AUUniversity of Lucerne · CHAustin Health · AUCurtin University · AUNorthern Sydney Local Health District · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

STUDY

designCross-sectional survey.

objectivesTo describe design and methods of Australian arm of International Spinal Cord Injury (Aus-InSCI) community survey, reporting on participation rates, potential non-response bias and cohort characteristics.

settingSurvey of community-dwelling people with SCI at least 12 months post-injury, recruited between March 2018 and January 2019, from state-wide SCI services, a government insurance agency and not-for-profit consumer organisations across four Australian states.

methodsThe Aus-InSCI survey combined data for people with SCI from nine custodians, using secure data-linkage processes, to create a population-based, anonymised dataset. The Aus-InSCI questionnaire comprised 193 questions. Eligibility, response status and participation rates were calculated. Descriptive statistics depict participant characteristics. Logistic regression models were developed for probability of participation, and inverse probability weights generated to assess potential non-response bias.

results1579 adults with SCI were recruited, a cooperation rate of 29.4%. Participants were predominantly male (73%), with 50% married. Mean age was 57 years (range 19-94) and average time post-injury 17 years (range 1-73). Paraplegia (61%) and incomplete lesions (68%) were most common. Males were more likely than females to have traumatic injuries (p < 0.0001) and complete lesions (p = 0.0002), and younger age-groups were more likely to have traumatic injuries and tetraplegia (p < 0.0001). Potential non-response bias evaluated using selected outcomes was found to be negligible in the Aus-InSCI cohort.

conclusionsThe Aus-InSCI survey made efforts to maximise coverage, avoid recruitment bias and address non-response bias. The distributed, linked and coded (re-identifiable at each custodian level) 'virtual quasi-registry' data model supports systematic cross-sectional and longitudinal research.

Indexed as

Spinal Cord InjuriesAdultAgedAged, 80 and overAustraliaCross-Sectional StudiesFemaleHumansMaleMiddle AgedParaplegiaQuadriplegiaYoung Adult

Identifiers

PMID36153439
PMCPMC10023561
OpenAlexW4296932036

What OpenQuestion holds

Textfull text, public
LicenceCC BY
measurements read65
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.