Evidence map›Paper›PMID 36153020›Full record

ArticleBMJ open2022

Parental experiences of children with developmental dysplasia of the hip: a qualitative study.

Wwes Theunissen, M C van der Steen, M R van Veen, Fqmp van Douveren, M A Witlox, J J Tolk

Open access · goldAbstract read
In one paragraph

Article in BMJ open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed, 1 pooled it
3.9field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 1 synthesis or guideline pooled it, 20 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 2 institutions in 1 country.

Wwes TheunissenDepartment of Orthopaedic Surgery & Trauma, Maxima Medical Centre, Veldhoven, The Netherlands wesley.theunissen@mmc.nl.ORCID 0000-0003-4960-7236
M C van der SteenDepartment of Orthopaedic Surgery & Trauma, Maxima Medical Centre, Veldhoven, The Netherlands.ORCID 0000-0001-5223-7649
M R van VeenDutch Hip Patient association 'Vereniging Afwijkende Heupontwikkeling (VAH)', Nijkerk, The Netherlands.
Fqmp van DouverenDepartment of Orthopaedic Surgery & Trauma, Maxima Medical Centre, Veldhoven, The Netherlands.
M A WitloxDepartment of Orthopaedic Surgery & Trauma, Maxima Medical Centre, Veldhoven, The Netherlands.
J J TolkDepartment of Orthopaedics and Sports Medicine, Erasmus MC Sophia Children's Hospital, Rotterdam, The Netherlands.ORCID 0000-0003-1685-7490
Radboud University Nijmegen · NLErasmus MC - Sophia Children’s Hospital · NL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveThe aim of this qualitative study was to explore the experiences of Dutch parents of children with developmental dysplasia of the hip (DDH), treated with a Pavlik harness, during the diagnostic and treatment process in the first year of life.

designA qualitative study by means of semistructured interviews was conducted between September and December 2020. Qualitative content analysis was applied to code, categorise and thematise data.

settingA large, tertiary referral centre for paediatric orthopaedics in the Netherlands.

participantsA purposive sample of parents of children aged younger than 1 year, who were treated for DDH with a Pavlik harness, were interviewed until data saturation was achieved. A total of 20 interviews with 22 parents were conducted.

resultsFive main themes emerged: (1) positive experiences with professionals and peers, (2) insufficient information, (3) treatment concerns, (4) difficulties parenting and (5) emotional burden. Most prominent features that resonated across the interviews which led to insecurity by parents were: insufficient pre-hospital information, unfiltered online information and the lack of overview of the patient journey.

conclusionThis study offers novel insights into parental experiences in DDH care. Parents were generally satisfied with DDH care provided by the hospital. The biggest challenges were to cope with (1) insufficient and unfiltered information, (2) the lack of patient journey overview and (3) practical problems and emotional doubts, which led to concerns during treatment. Future research and interventions should focus on optimising information provision and guidance with practical and emotional support for parents of children with DDH.

Indexed as

Developmental Dysplasia of the HipHip Dislocation, CongenitalChildHumansParentingParentsQualitative Researchhippaediatric orthopaedicspaediatric orthopaedic & trauma surgerypaediatrics

Identifiers

PMID36153020
PMCPMC9511546
OpenAlexW4297261261

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.