ArticleAnnals of surgical oncology2022
Who Are We Missing: Does Engagement in Patient-Reported Outcome Measures for Breast Cancer Vary by Age, Race, or Disease Stage?
Article in Annals of surgical oncology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed.
- Access to results of patient reported outcome surveys did not improve longitudinal patient reported outcomes in breast cancer patients in a randomized controlled trial.American journal of surgery · 2025Trial
- A multi-dimensional assessment of fatigue among patients undergoing breast radiotherapy.Technical innovations & patient support in radiation oncology · 2026Article
- Use of a Checkbox Format for Electronic Remote Symptom Monitoring After Surgery.JCO oncology practice · 2026Article
- Predictors of Satisfaction with Breasts and Psychosocial Well-Being After Nipple-Sparing Mastectomy.Annals of surgical oncology · 2026Article
- ASO Education and Training: Taking the Next Step in Surgical Oncology Health Disparities Research: Identifying Root Causes and Targets for Actionable Change.Annals of surgical oncology · 2026Review
- Anticipating incomplete patient-reported outcomes in schizophrenia: a machine learning approach to predict the occurrence of missing data.Health and quality of life outcomes · 2026Article
- Trends in Patient-Reported Outcomes After Breast-Conserving Surgery and Partial-Breast Versus Whole-Breast Irradiation.Annals of surgical oncology · 2026Article
- Digital Patient-Reported Cancer Symptom Management: Comparison of Black and White Participants.Cancer medicine · 2025Article
- Brief report: Relationships of frailty and age with nonresponse to patient reported outcome measures.Advances in patient-reported outcomes · 2025Article
- Living Flat: Stories from Women of Color After Mastectomy.Annals of surgical oncology · 2025Article
- ASO Author Reflections: A Community Partnered Approach to Studying Living Flat After Mastectomy.Annals of surgical oncology · 2025Article
- Article
- Nonresponse data in sexual well-being among breast reconstruction patients-who are we overlooking?Journal of surgical oncology · 2024Article
- Missingness mechanisms and generalizability of patient reported outcome measures in colorectal cancer survivors - assessing the reasonableness of the "missing completely at random" assumption.BMC medical research methodology · 2024Article
- Remote Symptom Monitoring with Clinical Alerts Following Mastectomy: Do Early Symptoms Predict 30-Day Surgical Complications.Annals of surgical oncology · 2024Article
- Examining Race and Patient-Reported Outcomes After Contralateral Prophylactic Mastectomy with Reconstruction.Annals of surgical oncology · 2024Article
- Value-based care as a solution to resolve the open debate on public healthcare outsourcing in Europe: What do the available data say?Frontiers in public health · 2024Article
- Recognizing Disparities in Breast Cancer Patient-Reported Outcome Measures.Annals of surgical oncology · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors.
Funding
Abstract
introductionPatient-reported outcome measures (PROM) are used to assess value-based care. Little is known as to whether PROM response in breast cancer reflects the diverse patient population. The BREAST-Q, a validated measure of satisfaction and quality of life, and Recovery Tracker, a postoperative assessment tool, are PROM routinely delivered to all patients undergoing breast surgery at our institution. Here we determine whether response to PROM differs by age, race, language, or disease stage.
methodsAll patients who had a breast operation between January 2020 and July 2021 were requested to complete the BREAST-Q and Recovery Tracker. Non-responders did not complete the PROM at any timepoint; responders completed 1 or more. Primary outcomes included rates of non-response versus response overall.
resultsOf 6374 patients identified, 5653 (88.7%) responded to either PROM [4366/4751 (91.9%) BREAST-Q; 2746/3384 (81.1%) Recovery Tracker]. On univariate analysis, non-responders were older (60 years versus 55 years, p < 0.001) and more often non-English speaking (p < 0.001), Hispanic ethnicity (p = 0.031), and Black race (p < 0.001), versus responders. On multivariate analysis, non-responders were significantly more often Black race and non-English speaking (p < 0.001). Non-English speakers were significantly less responsive among all ethnicities and races except Black race. Although breast cancer stage did not reach significance for response, patients with malignant disease and those receiving neoadjuvant chemotherapy responded more often.
conclusionsOur findings demonstrate high patient engagement using 2 different PROM following breast surgery, but suggest that PROM results may not reflect the experience of the entire breast cancer population. Care process changes based solely on PROM should consider these findings to ensure that the views of the entire spectrum of patients with breast cancer are represented.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.