ArticleJMIR research protocols2022
Patient-Reported Outcome Dashboards Within the Electronic Health Record to Support Shared Decision-making: Protocol for Co-design and Clinical Evaluation With Patients With Advanced Cancer and Chronic Kidney Disease.
Article in JMIR research protocols, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
22 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Co-research in the development of AI and digital health tools for cancer management and care: a systematic review.BMC health services research · 2026Pooled it
- A mixed-methods study characterizing patient experiences with digital survivorship services and preferences for care at a rural cancer center.Journal of cancer survivorship : research and practice · 2026Article
- Exploring Stakeholder Involvement in Intervention Implementation Studies: Systematic Evidence Synthesis With an Evidence Gap Map Approach.Evaluation & the health professions · 2026Review
- From predefined indicators to a management dashboard for heart failure telemonitoring: a modified nominal group technique approach in Portuguese hospitals.BMC health services research · 2026Article
- EStiMapp: A practical tool for mapping clinical symptoms evoked by electrical stimulation in intracranial EEG for epilepsy surgery.Clinical neurophysiology practice · 2026Article
- Nurses as guardians of time: the hidden clinical value of continuous care in geriatrics.Frontiers in public health · 2026Review
- Association Between a Co-Designed Dashboard and Use of Costly Health Services in Patients With Chronic Kidney Disease and Advanced Cancer: Propensity Score-Adjusted Difference-in-Differences Study.Journal of medical Internet research · 2025Article
- Systematic Review of Patient and Caregiver Involvement in CKD Research.Kidney international reports · 2025Article
- Evaluating a Web-Based Application to Facilitate Family-School-Health Care Collaboration for Children With Neurodevelopmental Disorders in Inclusive Settings: Protocol for a Nonrandomized Trial.JMIR research protocols · 2025Article
- Digital Health Innovations to Catalyze the Transition to Value-Based Health Care.JMIR medical informatics · 2025Article
- Implementation of patient-reported outcome dashboards within the electronic health record to support shared decision-making in serious chronic illness.BMJ open quality · 2025Article
- Participatory Design: Addressing Speech-Language Pathologists' Challenges through Collaborative Interface Design.Design issues · 2025Article
- Enhancing Data Completeness in Early Detection Pathway of Prostate Cancer: Integration of a Dashboard-Driven Feedback Tool to Improve Quality of Care.Journal of clinical medicine · 2024Article
- Development of an electronic health record-integrated patient-reported outcome-based shared decision-making dashboard in oncology.JAMIA open · 2024Article
- 'So Let's Go On Like This?'-Shared Decision-Making and the Use of Outcome Information in Routine Care Management for People With Multiple Sclerosis.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Shared decision-making and disease management in advanced cancer and chronic kidney disease using patient-reported outcome dashboards.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Patient-centered clinical decision support challenges and opportunities identified from workflow execution models.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Implementation of a Co-Design Strategy to Develop a Dashboard to Support Shared Decision Making in Advanced Cancer and Chronic Kidney Disease.Journal of clinical medicine · 2024Article
- Implementing a Patient-Reported Outcome Dashboard in Oncology Telemedicine Encounters: Clinician and Patient Adoption and Acceptability.JCO oncology practice · 2024Article
- Seamless Integration of Computer-Adaptive Patient Reported Outcomes into an Electronic Health Record.Applied clinical informatics · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
23 authors.
Funding
Abstract
backgroundPatient-reported outcomes-symptoms, treatment side effects, and health-related quality of life-are important to consider in chronic illness care. The increasing availability of health IT to collect patient-reported outcomes and integrate results within the electronic health record provides an unprecedented opportunity to support patients' symptom monitoring, shared decision-making, and effective use of the health care system.
objectiveThe objectives of this study are to co-design a dashboard that displays patient-reported outcomes along with other clinical data (eg, laboratory tests, medications, and appointments) within an electronic health record and conduct a longitudinal demonstration trial to evaluate whether the dashboard is associated with improved shared decision-making and disease management outcomes.
methodsCo-design teams comprising study investigators, patients with advanced cancer or chronic kidney disease, their care partners, and their clinicians will collaborate to develop the dashboard. Investigators will work with clinic staff to implement the co-designed dashboard for clinical testing during a demonstration trial. The primary outcome of the demonstration trial is whether the quality of shared decision-making increases from baseline to the 3-month follow-up. Secondary outcomes include longitudinal changes in satisfaction with care, self-efficacy in managing treatments and symptoms, health-related quality of life, and use of costly and potentially avoidable health care services. Implementation outcomes (ie, fidelity, appropriateness, acceptability, feasibility, reach, adoption, and sustainability) during the co-design process and demonstration trial will also be collected and summarized.
resultsThe dashboard co-design process was completed in May 2020, and data collection for the demonstration trial is anticipated to be completed by the end of July 2022. The results will be disseminated in at least one manuscript per study objective.
conclusionsThis protocol combines stakeholder engagement, health care coproduction frameworks, and health IT to develop a clinically feasible model of person-centered care delivery. The results will inform our current understanding of how best to integrate patient-reported outcome measures into clinical workflows to improve outcomes and reduce the burden of chronic disease on patients and health care systems. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/38461.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.