ArticleBMJ open2022
Assessing the outcomes and experiences of care from the perspective of people living with chronic conditions, to support countries in developing people-centred policies and practices: study protocol of the International Survey of People Living with Chronic Conditions (PaRIS survey).
Article in BMJ open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
27 citing papers in PubMed, 1 synthesis or guideline pooled it, 38 citations in OpenAlex.
- A systematic literature review on initiatives to involve children and adolescents in evaluating their hospitalization experience.BMC health services research · 2025Pooled it
- International survey of people living with chronic conditions: development and evaluation of the PaRIS Patient Questionnaire (PaRIS-PQ) in 18 countries.BMJ quality & safety · 2026Article
- Patient Safety in Family Medicine through the Eyes of People with Chronic Conditions in Slovenia.Zdravstveno varstvo · 2026Article
- Patient- and provider-level determinants of self-assessed health and well-being among adults with chronic conditions in Slovenian primary care.Health and quality of life outcomes · 2026Article
- Identifying patient and provider determinants of primary care experiences and outcomes for persons with chronic conditions: a multilevel analysis of a nation-wide survey in Norway.Family practice · 2026Article
- Evaluating the participatory processes within the OECD PaRIS project in Saskatchewan: lessons learned about recruitment and engagement.BMC primary care · 2026Article
- Design and Performance of an Email-Based Patient Recruitment Campaign in Primary Care Research: Formative Secondary Analysis.JMIR human factors · 2026Article
- The Development and Initial Psychometric Testing of a Patient-Reported Outcome Measure to Assess COPD-Related Emotional Distress.International journal of chronic obstructive pulmonary disease · 2026Article
- Measuring the strength of primary care: development of a new system of Structural Indicators for the Strength of Primary Care - SiSPC.Primary health care research & development · 2025Article
- Demographic and socioeconomic determinants of adherence in digital patient-reported outcomes among patients with chronic diseases.NPJ digital medicine · 2025Article
- A narrative review of the use of PROMs and machine learning to impact value-based clinical decision-making.BMC medical informatics and decision making · 2025Review
- Cultural Adaptation of Patient-Reported Indicator Surveys (PaRIS) Patient and Primary Care Practice Questionnaires to the Slovenian Context.Zdravstveno varstvo · 2025Article
- Patient's Perception of Primary Health Care Provision With Respect to Access, Continuity and Coordination-InCept: An International Qualitative Perspective.The International journal of health planning and management · 2025Article
- Health-Related Quality of Life and Bereavement in the 2019 Georgia Behavioral Risk Factor Surveillance System.Behavioral sciences (Basel, Switzerland) · 2024Article
- International survey of people living with chronic conditions (PaRIS survey): effects of general practitioner non-participation on the representativeness of the Norwegian patient data.BMC health services research · 2024Article
- Article
- Engaging primary care professionals in OECD's international PaRIS survey: a documentary analysis.Health research policy and systems · 2024Article
- Recruitment, data collection, participation rate, and representativeness of the international cross-sectional PRICOV-19 study across 38 countries.BMC primary care · 2024Article
- Data analysis plan of the OECD PaRIS survey: leveraging a multi-level approach to analyse data collected from people living with chronic conditions and their primary care practices in 20 countries.BMC research notes · 2024Article
- International cross-cultural development and field testing of the primary care practice questionnaire for the PaRIS survey (PaRIS-PCPQ).BMC primary care · 2024Article
Corrections and comments
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Authors and funding
16 authors at 7 institutions in 6 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionIn view of growing populations with chronic conditions, many countries are redesigning their health systems. However, little information is available about how health systems perform from the perspective of people living with chronic conditions. The Organisation for Economic Co-operation and Development (OECD) Member States therefore mandated the OECD to initiate the International Survey of People Living with Chronic Conditions (PaRIS survey), which aims to provide insight in outcomes and experiences of care as reported by people living with chronic conditions. The PaRIS-SUR consortium has been tasked by the OECD to support the development and implementation of the survey. METHODS AND ANALYSIS: As primary care services play a pivotal role in the management of chronic conditions, the PaRIS survey will be implemented in the primary care setting. Data will be collected with a survey among users of primary care services aged 45 years or older, of whom many have chronic conditions. An additional survey is conducted among their primary care providers. The nested study design will allow analysis of the patient-reported data in relation to characteristics of and care provided by primary care providers within and across countries. In 2022, the survey will be tested in a Field Trial in participating countries. Data for cross-country comparison will be collected by the Main Survey in 2023. ETHICS AND DISSEMINATION: Informed consent will be obtained from primary care providers and service users. National Project Managers search ethical approval of the survey in their country, if required. Reporting by the OECD will focus on questions for international comparison. A secured information technology platform will be developed for participants and stakeholders in countries to receive feedback and answer their own questions. Findings will also be disseminated through an international OECD flagship report, conferences, scientific papers and policy briefs, to inform strategies to improve care for people living with chronic conditions throughout the world.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.