Evidence map›Paper›PMID 36122551›Full record

ArticleApplied ergonomics2023

What makes a home? Designing home personas to represent the homes of families caring for children with medical complexity.

Hanna J Barton, Ellen Pflaster, Shanmugapriya Loganathar, Allison Werner, Adati Tarfa, David Wilkins, Mary L Ehlenbach, Barbara Katz, Ryan J Coller, Rupa Valdez and 1 more

Open access · greenAbstract read
In one paragraph

Article in Applied ergonomics, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.8field-weighted citation impact, top 25% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 8 citations in OpenAlex.

  1. Article
  2. Designing for caregiving networks: a case study of primary caregivers of children with medical complexity.Journal of the American Medical Informatics Association : JAMIA · 2024
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 3 institutions in 1 country.

Hanna J BartonDepartment of Industrial and Systems Engineering, University of Wisconsin-Madison, United States.
Ellen PflasterDepartment of Industrial and Systems Engineering, University of Wisconsin-Madison, United States.
Shanmugapriya LoganatharDepartment of Industrial and Systems Engineering, University of Wisconsin-Madison, United States.
Allison WernerSchool of Human Ecology, University of Wisconsin-Madison, United States.
Adati TarfaSchool of Pharmacy, University of Wisconsin-Madison, United States.
David WilkinsDepartment of Industrial and Systems Engineering, University of Wisconsin-Madison, United States.
Mary L EhlenbachDepartment of Pediatrics, School of Medicine and Public Health, University of Wisconsin-Madison, United States.
Barbara KatzFamily Voices of Wisconsin, United States.
Ryan J CollerDepartment of Pediatrics, School of Medicine and Public Health, University of Wisconsin-Madison, United States.
Rupa ValdezDepartment of Public Health Sciences and Department of Engineering Systems and Environment, University of Virginia, United States.
Nicole E WernerDepartment of Health and Wellness Design, Indiana University School of Public Health-Bloomington, United States. Electronic address: newerner@iu.edu.
University of Wisconsin–Madison · USEngineering Systems (United States) · USNorthwestern Health Sciences University · US

Funding

University of Wisconsin Institute for Clinical and Translational ResearchUL1TR002373 · NCATS · UNIVERSITY OF WISCONSIN-MADISON · PI ELIZABETH S BURNSIDE, Allan R. Brasier · 2017 to 2026
$75.9M
Institutional Career Development CoreKL2TR002374 · NCATS · UNIVERSITY OF WISCONSIN-MADISON · PI Bo Liu, Marin Leigh Schweizer · 2017 to 2026
$9.7M
Self-Management Characterization for Children with Medical Complexity and their Social NetworksR21NR017991 · NINR · UNIVERSITY OF VIRGINIA · PI KEIM-MALPASS, JESSICA, VALDEZ, RUPA SHETH · 2018 to 2019
$444k
NCATS NIH HHS KL2 TR002374NCATS NIH HHS UL1 TR002373NINR NIH HHS R21 NR017991
6 · The paper itself

Abstract

Personas are widely recognized as valuable design tools for communicating dimensions of individuals, yet they often lack critical contextual factors. For those people managing chronic health conditions, the home is a critical context of their patient work system (PWS). We propose the development of 'home personas' to convey essential aspects of the home context to those tasked with designing technologies and interventions to fit it. We used an iterative, multi-stakeholder design process to design 'home personas' for a model population, families caring for children with medical complexity. Each of the four resultant home personas-Multi-level, Customized, Ranch, and Rental-has a unique home layout, pain points, and are described on three dimensions that emerged from the data. This study builds on a foundation of work in the emerging field of Patient Ergonomics, describing a mechanism for distilling rich descriptions of the PWS into brief yet informative design tools.

Indexed as

ErgonomicsChildHumansChildren with medical complexityMacroergonomicsPatient workPersonaSociotechnical system

Identifiers

PMID36122551
PMCPMC10072316
OpenAlexW4296793812

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.