Evidence map›Paper›PMID 36114482›Full record

ArticleBMC geriatrics2022

Losing hope or keep searching for a golden solution: an in-depth exploration of experiences with extreme challenging behavior in nursing home residents with dementia.

Annelies E Veldwijk-Rouwenhorst, Sytse U Zuidema, Martin Smalbrugge, Anke Persoon, Raymond T C M Koopmans, Debby L Gerritsen

Open access · goldAbstract read
In one paragraph

Article in BMC geriatrics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
5.6field-weighted citation impact, top 4% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 21 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 4 institutions in 1 country.

Annelies E Veldwijk-RouwenhorstDepartment of Primary and Community Care, Radboud University Medical Center, Radboud Institute for Health Sciences, P.O. Box 9101, 6500, HB, Nijmegen, The Netherlands. annelies.veldwijk-rouwenhorst@radboudumc.nl.
Sytse U ZuidemaDepartment of General Practice and Elderly Care Medicine, University of Groningen, University Medical Center Groningen, Groningen, The Netherlands.
Martin SmalbruggeDepartment of Medicine for older people, Amsterdam Public Health Research Institute, Amsterdam UMC - Vrije Universiteit, Amsterdam, The Netherlands.
Anke PersoonDepartment of Primary and Community Care, Radboud University Medical Center, Radboud Institute for Health Sciences, P.O. Box 9101, 6500, HB, Nijmegen, The Netherlands.
Raymond T C M KoopmansDepartment of Primary and Community Care, Radboud University Medical Center, Radboud Institute for Health Sciences, P.O. Box 9101, 6500, HB, Nijmegen, The Netherlands.
Debby L GerritsenDepartment of Primary and Community Care, Radboud University Medical Center, Radboud Institute for Health Sciences, P.O. Box 9101, 6500, HB, Nijmegen, The Netherlands. debby.gerritsen@radboudumc.nl.
Radboud University Medical Center · NLRadboud University Nijmegen · NLUniversity Medical Center Groningen · NLVrije Universiteit Amsterdam · NL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundSituations of extreme challenging behavior such as very frequent and/or severe agitation or physical aggression in nursing home residents with dementia can be experienced as an impasse by nursing home staff and relatives. In this distinct part of our WAALBED (WAAL-Behavior-in-Dementia)-III study, we aimed to explore these situations by obtaining the experiences and perspectives of nursing home staff and relatives involved. This can provide a direction in providing tools for handling extreme challenging behavior of nursing home residents with dementia and may improve their quality of life.

methodsQualitative multiple case study with individual interviews and focus group discussions. Interviewees were elderly care physicians, psychologists, care staff members, unit managers and relatives (n = 42). They were involved with nursing home residents with dementia and extreme challenging behavior living on dementia special care units in the Netherlands. For these residents, external consultation by the Centre for Consultation and Expertise was requested. Audio-recordings of the interviews were transcribed verbatim and analyzed with thematic analysis, including conventional content analysis.

resultsSeven cases were included. Forty-one individual interviews and seven focus group discussions were held. For six stakeholder groups (resident, relative, care staff, treatment staff, nursing home staff, and the organization), three main factors could be identified that contributed to experiencing a situation of extreme challenging behavior as an impasse: 1) characteristics and attitudes of a stakeholder group, 2) interaction issues within a stakeholder group and 3) interaction issues among (groups of) stakeholders. The experienced difficulties with the resident's characteristics, as well as suboptimal interdisciplinary collaboration and communication among the nursing home staff are remarkable. Nursing home staff kept searching for a golden solution or lost hope.

conclusionsThis study offers important insights into situations of extreme challenging behavior in nursing home residents with dementia and offers caregivers targets for improving care, treatment and interdisciplinary collaboration, such as working uniformly and methodically.

Indexed as

DementiaAgedCaregiversHumansNursing HomesQualitative ResearchQuality of LifeChallenging behaviorDementiaNursing homeQualitative research

Identifiers

PMID36114482
PMCPMC9479311
OpenAlexW4296164587

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.