ArticlePalliative medicine2022
Strategies for recruiting the dependent children of patients with a life-limiting illness as research participants.
Article in Palliative medicine, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
1 citing paper in PubMed.
- Can the 'Deathbed Etiquette' guide support friends and family to navigate the dying process? A qualitative study examining the views of bereaved people.Palliative care and social practice · 2026Article
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
backgroundThe voices of children and adolescents have historically been substituted by the perspective of adults. There is growing recognition that children (<18 years old) are able to participate in research and appreciate the opportunity to participate in studies.
aimTo share the strategies employed by two research teams from USA and UK, who have successfully recruited children living with parental life-limiting illness as research participants.
findingsThe researchers overcame common challenges when negotiating ethics committees by anticipating the IRB/REC concerns, providing the committees with detailed applications including distress protocols, and offering resources to their ethics committee to learn about conducting research with this population. The researchers navigated recruitment and gatekeeping by clinicians and parents by partnering with clinical agencies and nurturing relationships with practitioners who are supportive of the research, offering to present the findings of the study with continuing education credits, and developing children's, adolescents' and parents' project advisory groups to support recruitment, data collection and analysis.
conclusionsSimple strategies can be used to overcome barriers to recruitment, providing opportunities for children to be research participants and for their unique perspectives to be heard in palliative care research.
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Registered trials
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