Evidence map›Paper›PMID 36100431›Full record

ArticleBMJ supportive & palliative care2023

Grief and bereavement of family and friends around medical assistance in dying: scoping review.

Han Yan, Jessica Bytautas, Sarina Roslyn Isenberg, Ari Kaplan, Narges Hashemi, Mona Kornberg, Tekla Hendrickson

Abstract readScoping Review
In one paragraph

Article in BMJ supportive & palliative care, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Han YanU of T IHPME, Toronto, Ontario, Canada.ORCID http://orcid.org/0000-0002-0494-0214
Jessica BytautasDalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada.ORCID http://orcid.org/0000-0002-7931-2036
Sarina Roslyn IsenbergOttawa University, Ottawa, Ontario, Canada.
Ari KaplanMAiDHouse, Toronto, Ontario, Canada.
Narges HashemiDepartment of Family and Community Medicine, University of Toronto, Toronto, Ontario, Canada.
Mona KornbergMAiDHouse, Toronto, Ontario, Canada.
Tekla HendricksonMAiDHouse, Toronto, Ontario, Canada tekla@maidhouse.ca.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesThe increase in the number of jurisdictions legalising medical assistance in dying (MAiD) has contributed to a growth in the number of family and friends who may face unique elements of grief and bereavement. The aim of this study was to review the literature of grief and bereavement of family and friends following MAiD, and to summarise findings for the development of community resources and programming.

methodsWe performed a scoping review with workshop consultation of stakeholders. Six electronic databases and the grey literature were searched for qualitative, quantitative and review articles. Content-analytical techniques and multidisciplinary discussions led to the development of concepts and a conceptual framework.

resultsTwenty-eight articles met the inclusion criteria. We identified five concepts that impact the grief and bereavement of family/friends: relationships between family/friends and the patient as well as healthcare providers; aspects of MAiD grief which can include secrecy and/or anticipatory grief; preparations which may include family/friends and should be centralised and harmonised; end of life as an opportunity for ceremony; and the aftereffects during which mental health outcomes are studied.

conclusionThis multidisciplinary scoping review incorporates stakeholder consultation to find that support is needed to address the complicated and changing emotions of family/friends before, during and after a MAiD death. Furthermore, additional societal normalisation of MAiD is necessary to reduce secrecy and stigma and improve the accessibility of resources for family/friends.

Indexed as

BereavementFriendsDeathFamilyGriefHumansSocial SupportBereavementEnd of life careQuality of lifeTerminal care

Identifiers

PMID36100431
PMCPMC10803956

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.