Evidence map›Paper›PMID 36096177›Full record

ArticleThe Journal of pediatrics2022

A Qualitative Study of Parental Perspectives on Prenatal Counseling at Extreme Prematurity.

Anne Sullivan, Bonnie Arzuaga, Donna Luff, Vanessa Young, Maureen Schnur, David Williams, Christy Cummings

Open access · greenAbstract read
In one paragraph

Article in The Journal of pediatrics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed, 1 pooled it
6.5field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 1 synthesis or guideline pooled it, 18 citations in OpenAlex.

  1. Pooled it
  2. Article
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  5. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 2 institutions in 1 country.

Anne SullivanDivision of Newborn Medicine, Boston Children's Hospital, Boston, MA; Harvard Medical School, Boston, MA. Electronic address: Anne.Sullivan@childrens.harvard.edu.
Bonnie ArzuagaHarvard Medical School, Boston, MA; South Shore Hospital, Weymouth, MA.
Donna LuffHarvard Medical School, Boston, MA; Division of Anesthesia and SimPeds, Boston Children's Hospital, Boston, MA.
Vanessa YoungDivision of Newborn Medicine, Boston Children's Hospital, Boston, MA.
Maureen SchnurDivision of Newborn Medicine, Boston Children's Hospital, Boston, MA.
David WilliamsInstitutional Centers for Clinical and Translational Research, Boston Children's Hospital, Boston, MA.
Christy CummingsDivision of Newborn Medicine, Boston Children's Hospital, Boston, MA; Harvard Medical School, Boston, MA.
Boston Children's Hospital · USHarvard University · US

Funding

Neonatal Research Training ProgramT32HD098061 · NICHD · BOSTON CHILDREN'S HOSPITAL · PI Stella Kourembanas, Martha C. Sola-Visner · 2019 to 2026
$4.0M
Optimizing Family Counseling for Anticipated Extremely Preterm Delivery R01HD094794 · NICHD · BOSTON CHILDREN'S HOSPITAL · PI CUMMINGS, CHRISTY LYNN · 2019 to 2023
$1.9M
NICHD NIH HHS R01 HD094794NICHD NIH HHS T32 HD098061
6 · The paper itself

Abstract

objectiveTo determine parental preferred language, terminology, and approach after prenatal counseling for an anticipated extremely preterm delivery. STUDY

designPregnant persons (and their partners) admitted at 22

resultsThirty-nine interviews were conducted representing 28 total prenatal consults. Analysis identified 2 overarching themes impacting the whole counseling experience: the need for reassurance and compassionate communication, while parents traveled along a dynamic decision-making journey they described as fluid and ever-changing. Related themes included the following: (1) Finding Balance: parents reported the importance of balancing positivity and negativity as well as tailoring the amount of information, (2) The Unspoken: parents described assumptions and inferences surrounding language, resuscitation options, and values that can cloud the counseling process, (3) Making the Intangible Tangible: parents reported the importance of varied communication strategies, for example, visuals to better anticipate and prepare, and (4) Team Synergism: Parents expressed desire for communication and consistency among and between teams, which increased trust.

conclusionsParents facing extremely premature delivery generally did not report remembering specific terminology used during prenatal consultation but rather how the language and counseling approach made them feel and affected the decision-making process. These findings have implications for further research and educational intervention design to improve clinicians' counseling practices to better reflect parental preferences and ultimately improve counseling outcomes.

Indexed as

Infant, Newborn, DiseasesInfant, Premature, DiseasesCommunicationCounselingDecision MakingEmpathyFemaleHumansInfant, NewbornParentsPregnancyQualitative Researchantenatal consultationlanguageperiviabilityshared decision-making

Identifiers

PMID36096177
PMCPMC9729443
OpenAlexW4295138687

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.