ArticleAlzheimer's & dementia (Amsterdam, Netherlands)2022
Development and design of a diagnostic report to support communication in dementia: Co-creation with patients and care partners.
Article in Alzheimer's & dementia (Amsterdam, Netherlands), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
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Who cites it
13 citing papers in PubMed.
- Communicating the risk of psychiatric in-patient or enhanced community care in dementia.BJPsych open · 2026Article
- Deciphering Perspectives: A European Survey on Clinical Decision Support Tools for Dementia and Alzheimer's Disease.Dementia and geriatric cognitive disorders · 2025Article
- Communicating the risk of dementia: a scoping review.BMJ neurology open · 2025Article
- Computerized decision support to optimally funnel patients through the diagnostic pathway for dementia.Alzheimer's research & therapy · 2024Article
- Amyloid PET disclosure in subjective cognitive decline: Patient experiences over time.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2024Article
- Predicting Cognitive Decline in Amyloid-Positive Patients With Mild Cognitive Impairment or Mild Dementia.Neurology · 2024Article
- Use of a digital tool to support the diagnostic process in memory clinics-a usability study.Alzheimer's research & therapy · 2024Article
- The expectations and experiences of patients regarding the diagnostic workup at a specialized memory clinic: An interview study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Computerized decision support is an effective approach to select memory clinic patients for amyloid-PET.PloS one · 2024Article
- Biomarker disclosure protocols in prodromal Alzheimer's disease clinical trials.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2023Review
- Communication about diagnosis, prognosis, and prevention in the memory clinic: perspectives of European memory clinic professionals.Alzheimer's research & therapy · 2023Article
- Development and design of a diagnostic report to support communication in dementia: Co-creation with patients and care partners.Alzheimer's & dementia (Amsterdam, Netherlands) · 2022Article
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Authors and funding
6 authors.
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Abstract
Introduction: Clear communication of diagnostic test results and dementia diagnosis is challenging yet important to empower patients and care partners. A personalized diagnostic report could support the communication of dementia diagnostics and aid patients' understanding of diagnosis. In this study, we aimed to design a diagnostic report in co-creation with patients and care partners. Methods: We used a mixed-methods approach, combining surveys with focus groups in iteration. Phase 1 consisted of an international survey assessing needs among patients ( Results: Most patients (39/50, 78%) and care partners (38/46, 83%) positively valued a diagnostic report to summarize test results. The report should be brief, straightforward, and comprise results of the diagnostic tests, including brain imaging and information on future expectations. Despite a clear preference for visual display of test results, several visualization options were deemed best and were equally comprehended. Discussion: In this study, we developed a prototype of a personalized patient report through an iterative design process and learned that co-creation is highly valuable to meet the specific needs of end-users.
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