Evidence map›Paper›PMID 36083947›Full record

ArticlePloS one2022

People with Parkinson's perspectives and experiences of self-management: Qualitative findings from a UK study.

Ria Shah, Joy Read, Nathan Davies, Danielle Nimmons, Jennifer Pigott, Anette Schrag, Kate Walters, Megan Armstrong

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in PloS one, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
30citing papers in PubMed, 3 pooled it
4.2field-weighted citation impact, top 5% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

30 citing papers in PubMed, 3 syntheses or guidelines pooled it, 34 citations in OpenAlex.

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  14. 'It Would've Been Nice to Know About Allied Health Earlier': Insights From People With Parkinson's Disease.Health expectations : an international journal of public participation in health care and health policy · 2025
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  20. Co-Design of a Facilitated Self-Management Toolkit for People With Parkinson's Disease.Health expectations : an international journal of public participation in health care and health policy · 2024
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 1 institution in 1 country.

Ria ShahDepartment of Primary Care and Population Health, University College London, London, United Kingdom.
Joy ReadInstitute of Neurology, University College London, London, United Kingdom.
Nathan DaviesDepartment of Primary Care and Population Health, University College London, London, United Kingdom.
Danielle NimmonsDepartment of Primary Care and Population Health, University College London, London, United Kingdom.
Jennifer PigottInstitute of Neurology, University College London, London, United Kingdom.
Anette SchragInstitute of Neurology, University College London, London, United Kingdom.
Kate WaltersDepartment of Primary Care and Population Health, University College London, London, United Kingdom.
Megan ArmstrongDepartment of Primary Care and Population Health, University College London, London, United Kingdom.ORCID 0000-0001-6773-9393
University College London · GB

Funding

Department of Health
6 · The paper itself

Abstract

introductionParkinson's prevalence is growing, and more people are being impacted by the condition than ever before. Self-management has been proposed as one way to enable people living with the condition to improve or maintain their quality of life and wellbeing whilst living at home.

aimTo explore the views and experiences of how people living with Parkinson's self-manage their condition and identify areas needed to be incorporated into self-management resources or interventions.

methodTwenty people with Parkinson's from across London and Hertfordshire, UK took part in semi-structured interviews on self-management. Interviews were transcribed and analysed using thematic analysis to identify themes.

resultsThree main themes were identified: (1) Management of physical symptoms, which included engaging in physical activities, adapting their lifestyles, managing medication and using e-health resources; (2) Management of emotional impact, which involved using a range of cognitive and practical strategies, and seeking talking therapies and medication; and (3) barriers to self-management such as accessing accurate information, experiencing stigma towards their condition which impacted their self-esteem and identity, in turn impacting on their ability to self-manage.

conclusionHolistic and person-centred self-management programmes or interventions should be developed incorporating components such as medication and emotional support, individualised planning of exercise regimes, and accessible, timely and accurate information. Furthermore, more public health knowledge on Parkinson's is needed to help reduce stigma.

Indexed as

Parkinson DiseaseSelf-ManagementExerciseHumansQualitative ResearchQuality of LifeUnited Kingdom

Identifiers

PMID36083947
PMCPMC9462566
OpenAlexW4295067412

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.