Evidence map›Paper›PMID 36071538›Full record

ArticleResearch involvement and engagement2022

Patient-identified priorities for successful partnerships in patient-oriented research.

Maria J Santana, D'Arcy Duquette, Paul Fairie, Ingrid Nielssen, Sumedh Bele, Sadia Ahmed, Tiffany Barbosa, Sandra Zelinsky

Open access · goldAbstract readLetter
In one paragraph

Article in Research involvement and engagement, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
8.6field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed, 32 citations in OpenAlex.

  1. Article
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  6. Observational
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  10. Co-building a training programme to facilitate patient, family and community partnership on research grants: A patient-oriented research project.Health expectations : an international journal of public participation in health care and health policy · 2023
    Article
  11. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 1 institution in 1 country.

Maria J SantanaDepartment of Pediatrics, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada. mjsantan@ucalgary.ca.
D'Arcy DuquettePatient Partner, Alberta SPOR SUPPORT Unit, Edmonton, Canada.
Paul FairieDepartment of Community Health Sciences, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
Ingrid NielssenDepartment of Community Health Sciences, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
Sumedh BeleDepartment of Pediatrics, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
Sadia AhmedDepartment of Pediatrics, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
Tiffany BarbosaDepartment of Community Health Sciences, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
Sandra ZelinskyDepartment of Community Health Sciences, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
University of Calgary · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Albertans4HealthResearch, supported by the Alberta Strategy for Patient-Oriented Research Patient Engagement Team, hosted a virtual round table discussion to develop a list of considerations for successful partnerships in patient-oriented research. The group, which consists of active patient partners across the Canadian province of Alberta and some research staff engaged in patient-oriented research, considered advice for academic researchers on how to best partner with patients and community members on health research projects. The group identified four main themes, aligned with the national strategy for patient-oriented research (SPOR) patient engagement framework, highlighting important considerations for researchers from the patient perspective, providing practical ways to implement SPOR's key principles: inclusiveness, support, mutual respect, and co-building. This commentary considers the process behind this engagement exercise and offers advice directly from active patient research partners on how to fulfill the operational patient engagement mandate. Academic research teams can use this guidance when considering how to work together with patient partners and community members.

Indexed as

Co-productionPatient and public involvementPatient priorities

Identifiers

PMID36071538
PMCPMC9450417
OpenAlexW4294945977

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.