Evidence map›Paper›PMID 36069000›Full record

ArticleJournal of the American Geriatrics Society2023

Fielding the quality of communication questionnaire to persons with cognitive impairment and their family in primary care: A pilot study.

Jenni S Reiff, John Cagle, Talan Zhang, David L Roth, Jennifer L Wolff

Registry-linked trialAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of the American Geriatrics Society, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04593472 (Sharing Healthcare Wishes in Primary Care), which is not on this map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04593472 nacompletednot on this map

Sharing Healthcare Wishes in Primary Care

TypeinterventionalSponsorJohns Hopkins UniversityRan2020 to 2025Enrolled273ConditionsCognitive ImpairmentArmsSharing Healthcare Wishes in Primary Care (SHARE), Minimally Enhanced Usual Care
3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Trial
  2. Trial
  3. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Jenni S ReiffDepartment of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.
John CagleSchool of Social Work, University of Maryland, Baltimore, Baltimore, Maryland, USA.
Talan ZhangCenter on Aging and Health, Division of Geriatric Medicine and Gerontology, Johns Hopkins University, Baltimore, Maryland, USA.
David L RothCenter on Aging and Health, Division of Geriatric Medicine and Gerontology, Johns Hopkins University, Baltimore, Maryland, USA.
Jennifer L WolffDepartment of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.

Funding

Involving Family to Improve Advance Care Planning for Primary Care Patients with ADRDR01AG058671 · NIA · JOHNS HOPKINS UNIVERSITY · PI WOLFF, JENNIFER L. · 2019 to 2023
$3.8M
Health Services and Outcomes Research for Aging PopulationsT32AG066576 · NIA · JOHNS HOPKINS UNIVERSITY · PI CYNTHIA Melinda BOYD, Jennifer L. Wolff · 2020 to 2026
$3.8M
NIA NIH HHS 5R01AG058671NIA NIH HHS 5T32AG066576NIA NIH HHS R01 AG058671NIA NIH HHS T32 AG066576
6 · The paper itself

Abstract

backgroundThe quality of communication (QOC) questionnaire has been widely used to assess foundational aspects of patient-clinician communication about end-of-life (EOL) care. However, this instrument has never before been fielded with primary care patients who have cognitive impairment and their caregivers, a population with unique communication needs.

designWe report on baseline data from a completed pilot study and ongoing efficacy trial of advance care planning involving dyads of primary care patients ages 80 and older with cognitive impairment and their family care partners. Two QOC subscales assessed ratings of general communication and EOL care communication from 0 ("worst") to 10 ("best"). Due to challenges piloting the EOL subscale, we integrated skip logic to improve cognitive accessibility and measurement precision. Participants were first asked whether EOL communication occurred (yes/no); those responding affirmatively were subsequently asked to rate communication. We report experiences with EOL subscale adaptations from our ongoing trial (NCT04593472).

resultsUsing the original instrument in our pilot (13 dyads), mean patient and family general communication ratings were similar (9.65 and 9.60, respectively), but EOL ratings diverged (4.23 and 5.88, respectively), and "Don't Know" comprised 5% of patient and 32% of family responses. Interviewers reported patient and family participants expressed confusion when asked to rate EOL communication behaviors that had not occurred. Using the adapted instrument in our efficacy trial (43 dyads), EOL communication behaviors were most often reported as not having occurred (76% of patient and 73% of family responses across all items). Mean patient and family EOL subscale ratings were similar (2.23 and 2.26) and responses of "Don't Know" were minimal (<1%).

conclusionThe original QOC EOL subscale involves rating conversations that rarely occur in primary care but are important for older adults with cognitive impairment. Subscale adaptations may reduce confusion and response uncertainty and improve measurement accuracy.

Indexed as

Cognitive DysfunctionTerminal CareAged, 80 and overClinical Trials as TopicCommunicationHumansPilot ProjectsPrimary Health CareSurveys and Questionnairescaregivercommunicationdementiaend-of-lifeprimary care

Identifiers

PMID36069000
PMCPMC9870855

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.