Evidence map›Paper›PMID 36065743›Full record

ArticleActa dermato-venereologica2022

Development of a Conceptual Framework for a Patient-Reported Impact of Dermatological Diseases (PRIDD) Measure: A Qualitative Concept Elicitation Study.

Rachael Pattinson, Rachael M Hewitt, Nirohshah Trialonis-Suthakharan, Evangelos Chachos, Nick Courtier, Jennifer Austin, Christine Janus, Matthias Augustin, Chris Bundy

Open access · goldAbstract read
In one paragraph

Article in Acta dermato-venereologica, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
2.2field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it, 8 citations in OpenAlex.

  1. Pooled it
  2. Building the foundations for an international patient-centred outcomes set for psoriasis: A scoping study.Journal of the European Academy of Dermatology and Venereology : JEADV · 2026
    Article
  3. Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 4 institutions in 3 countries.

Rachael PattinsonSchool of Healthcare Sciences, Cardiff University, Room 12.14, Eastgate House, 35-43 Newport Road, Cardiff, CF24 0AB, UK. pattinsonr@cardiff.ac.uk.
Rachael M HewittSchool of Healthcare Sciences, Cardiff University, Room 12.14, Eastgate House, 35-43 Newport Road, Cardiff, CF24 0AB, UK.
Nirohshah Trialonis-SuthakharanInstitute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany.
Evangelos ChachosTurner Institute for Brain and Mental Health, Monash University, Melbourne, Australia.
Nick CourtierSchool of Healthcare Sciences, Cardiff University, Room 12.14, Eastgate House, 35-43 Newport Road, Cardiff, CF24 0AB, UK.
Jennifer AustinInternational Alliance of Dermatology Patient Organizations, Ottawa, Canada.
Christine JanusInternational Alliance of Dermatology Patient Organizations, Ottawa, Canada.
Matthias AugustinInstitute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE).
Chris BundySchool of Healthcare Sciences, Cardiff University, Room 12.14, Eastgate House, 35-43 Newport Road, Cardiff, CF24 0AB, UK.
Cardiff University · GBDigital Research Alliance of CanadaUniversität Hamburg · DEMonash University · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Existing patient-reported outcome measures cannot comprehensively capture the full impact of living with a dermatological condition. The aim of this study was to develop a conceptual framework on which to build a new Patient-Reported Impact of Dermatological Diseases (PRIDD) measure. Adults (≥ 18 years of age) living with a dermatological condition, worldwide and/or representatives from a patient organization recruited via a global patient organization network, were invited to an individual or group interview. Data were analyzed thematically. Sixty-five people from 29 countries, representing 29 dermatological conditions, participated. Key themes were: (i) impacts at the individual, organizational and societal levels; (ii) impacts were point-in-time and cumulative; and (iii) impact is a multifaceted construct, with two subthemes (iiia) common impacts and (iiib) psychological and social impacts are most significant. The conceptual framework shows that impact is a multifaceted concept presenting across physical, psychological, social, financial, daily functioning and healthcare, and provides the basis for co-constructing the PRIDD with patients.

Indexed as

Patient Reported Outcome MeasuresPatientsAdultHumansQualitative ResearchQuality of Life

Identifiers

PMID36065743
PMCPMC9811283
OpenAlexW4294751422

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.