ArticleHealth expectations : an international journal of public participation in health care and health policy2022
The Youth Patient and Public Involvement Café-A youth-led model for meaningful involvement with children and young people.
Article in Health expectations : an international journal of public participation in health care and health policy, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 2 of them syntheses that pooled it.
What it found
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The trial behind it
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Who cites it
14 citing papers in PubMed, 2 syntheses or guidelines pooled it, 24 citations in OpenAlex.
- Barriers and Facilitators to The Involvement of Under-Represented Children and Young People (aged 8-25) in Mental Health Research - a Systematic Review.Clinical child and family psychology review · 2025Pooled it
- What Do We Know About Sharing Power in Co-Production in Mental Health Research? A Systematic Review and Thematic Synthesis.Health expectations : an international journal of public participation in health care and health policy · 2024Pooled it
- "It gives me confidence and value": evaluating All_Ears@UoS patient and public involvement and engagement (PPIE) group three years on.Research involvement and engagement · 2026Article
- "To make a positive difference": diverse youth perspectives on getting involved in mental health research.Research involvement and engagement · 2026Article
- Partnering With Teens With Past Suicide-Related Crises: Development, Application and Refinement of Safety Procedures for Co-Design.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Collaborating With Young People: Identifying the Barriers and Facilitators in Co-Designed Research.Health expectations : an international journal of public participation in health care and health policy · 2025Review
- Codesign is the zeitgeist of our time, but what do we mean by this? A scoping review of the concept of codesign in collaborative research with young people.Health research policy and systems · 2025Article
- Exploring How Children and Young People With Sickle Cell Disease and Their Families Want to be Involved in Research: A Qualitative Study.Health expectations : an international journal of public participation in health care and health policy · 2025Observational
- Anything goes for participant, patient and public involvement in youth mental health research.JCPP advances · 2024Article
- No decision about me, without me: Collaborating with young people in mental health research.JCPP advances · 2024Article
- Understanding and Defining Young People's Involvement and Under-Representation in Mental Health Research: A Delphi Study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Article
- A qualitative study exploring the benefits of involving young people in mental health research.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- The Youth Patient and Public Involvement Café-A youth-led model for meaningful involvement with children and young people.Health expectations : an international journal of public participation in health care and health policy · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionThere are few meaningful frameworks or toolkits that exist for involvement with young people. Coproduction is a more recent patient and public involvement (PPI) approach that emphasizes the importance of power-sharing, to set young people as equal partners in the research process. This paper explores the successes and challenges encountered by one coproduced PPI space for young people.
methodsThis paper is written by a team of young people who developed and worked on the Youth PPI Café over a period of 18 months. It explores how we developed a youth-led space for involvement in research. The authors have reflected on their experiences, providing examples of how youth PPI and coproduction were delivered in the NHS, in practice.
resultsBy working 'with' young people, rather than 'for' them, we offer insights into the successes and challenges of an entirely youth-led involvement space. Despite being effective in shaping mental health research for children and young people, we faced challenges with tokenism, resourcing and diversity and inclusion.
conclusionsInvolving youth meaningfully in research has the potential to inform studies at a macro- and microlevel, enabling positive change within research and within the systems that support young people. PATIENT OR PUBLIC CONTRIBUTION: Young people aged 16-24 years with lived experience were included at every stage of this project, from formulation to the delivery and development of the group, to the preparation of this manuscript and its dissemination. Sussex Partnership NHS Foundation Trust's charity 'Heads On' provided funding for this study.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.