Evidence map›Paper›PMID 36062865›Full record

ArticleJournal of advanced nursing2023

Patients' experiences and perceptions of dignity in end-of-life care in emergency departments: A qualitative study.

Celia Martí-García, Alba Fernández-Férez, Cayetano Fernández-Sola, Rocío Pérez-Rodríguez, Ana Alejandra Esteban-Burgos, José Manuel Hernández-Padilla, José Granero-Molina

Abstract read
In one paragraph

Article in Journal of advanced nursing, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Celia Martí-GarcíaDepartment of Nursing, University of Málaga, Málaga, Spain.ORCID https://orcid.org/0000-0003-2656-8473
Alba Fernández-FérezEmergency Department, Hospital Universitario Torrecárdenas, Almería, Spain.ORCID https://orcid.org/0000-0002-2956-8770
Cayetano Fernández-SolaDepartment of Nursing Science, Physiotherapy and Medicine, University of Almería, Spain.ORCID https://orcid.org/0000-0003-1721-0947
Rocío Pérez-RodríguezLa Inmaculada' Hospital, Almería, Spain.ORCID https://orcid.org/0000-0002-5324-7774
Ana Alejandra Esteban-BurgosDepartment of Nursing, University of Granada, Granada, Spain.ORCID https://orcid.org/0000-0003-0665-1106
José Manuel Hernández-PadillaDepartment of Nursing Science, Physiotherapy and Medicine, University of Almería, Spain.ORCID https://orcid.org/0000-0002-5032-9440
José Granero-MolinaDepartment of Nursing Science, Physiotherapy and Medicine, University of Almería, Spain.ORCID https://orcid.org/0000-0002-7051-2584

Funding

Ministerio de Asuntos Económicos y Transformación Digital, Gobierno de España FFI2016-76927-P
6 · The paper itself

Abstract

aimsTo explore and understand the experiences of patients with advanced illness in relation to dignity during end-of-life care in emergency departments.

designQualitative study based on Gadamer's hermeneutics.

methodsBetween September 2019 and February 2020, 16 in-depth interviews were carried out with advanced illness patients who attended emergency departments. The participants were informed priorly and signed informed consent. The data were analysed using an inductive strategy for finding emerging themes. The Consolidated Criteria for Reporting Qualitative Research was used for writing the study's report.

resultsIn the data analysis process, two main themes emerged that glean the experiences of patients in relation to dignity during end-of-life care in emergency departments. 'Dignity as an individual's attribute' and 'Acting with dignity: Dignity as a behavioural attribute'.

conclusionPatient dignity in end-of-life care is centred around the principle of control (of oneself, one's death and one's emotions). The strategies required for patients to preserve their dignity can be somewhat incompatible with the dynamics and objectives of healthcare professionals who work in emergency departments. IMPACT STATEMENT: The dignity of patients with advanced illness who attend emergency departments is a relevant issue that merits being addressed from the patients' perspective. Participants have identified that dignity is a way of being and behaving in the face of illness. Emergency departments need to respect end-of-life patients' desires by supporting and accompanying them, avoiding therapeutic obstinacy. We recommend care to be centred on patients' well-being, to respect their autonomy and decision-making processes, and to allow prompt referrals to palliative care services. PATIENT OR PUBLIC CONTRIBUTION: Managers from the Emergency Departments participated in the study design and patients' recruitment. Patients' relatives were informed about the study's aim, and they contributed to the development of the interview protocol.

Indexed as

Hospice CareTerminal CareEmergency Service, HospitalHumansPalliative CareQualitative ResearchRespectadvanced illnessdignityemergency departmentsend-of-life carehermeneuticsnursingqualitative research

Identifiers

PMID36062865
PMCPMC10087743

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LicenceCC BY-NC-ND
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.