ArticlePalliative care and social practice2022
The construction of the responsible patient in complex palliative care: interpreting palliative care policies.
Article in Palliative care and social practice, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
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Who cites it
3 citing papers in PubMed.
- Kept at a Distance: A Qualitative Study of Bereaved Individuals' Experiences of How Death Was Addressed When Their Partner Died at Home.Qualitative health research · 2026Article
- What matters to patients with cancer receiving home care at the end of life? A qualitative study comparing patients' and healthcare professionals' views.International journal of qualitative studies on health and well-being · 2025Article
- How social workers are positioned and constructed as contributors within national palliative care policies in Sweden: a policy analysis.Palliative care and social practice · 2024Article
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Authors and funding
2 authors.
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Abstract
Background: To contribute with knowledge to health policy development, this article presents a critical discourse analysis of two Norwegian official reports on palliative care published in 1999 and 2017. Methods: We identify, describe and discuss how linguistic features in policy documents contribute to and engender a distinct change from 1999 to 2017 in how patients are framed, documenting the development of palliative care. Results: The analysis identifies and considers two interwoven discourses: the discourse of accountability and the discourse of complexity. The patient moves from being described as in need of care, in the 1999 report, to being described as an active and responsible patient making proper choices, in the 2017 report. Conclusion: Result of this policy development might be less involvement of professionals and focus on existential questions, and more responsibility on patients for their prospective wellbeing and health: a change that we argue should be considered and counteracted in upcoming policy processes considering palliative care.
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