Evidence map›Paper›PMID 36057736›Full record

ArticleJournal of patient-reported outcomes2022

"It cannot be boring!": Developing a measure of function for young adults accessing integrated youth services.

Skye Barbic, Emily Brooks, Natalia Lassak, Mo Khaleghi, Marco Zenone, Nikki Ow, Adelena Leon, Steve Mathias

Abstract read
In one paragraph

Article in Journal of patient-reported outcomes, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Trial
  2. Co-Development and Validation of a Patient-Reported Experience Measure for Trans and Gender Diverse Young People: A Multi-Stage Participatory Study Protocol.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  3. Article
  4. Article
  5. Measuring Goal Progress Using the Goal-Based Outcome Measure in Youth Wellness Hubs Ontario-An Integrated Youth Services Network.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Skye BarbicDepartment of Occupational Science and Occupational Therapy, The University of British Columbia, 2211 Wesbrook Mall T325, Vancouver, BC, V6T 2B5, Canada. skye.barbic@ubc.ca.
Emily BrooksDepartment of Occupational Science and Occupational Therapy, The University of British Columbia, 2211 Wesbrook Mall T325, Vancouver, BC, V6T 2B5, Canada.
Natalia LassakDepartment of Occupational Science and Occupational Therapy, The University of British Columbia, 2211 Wesbrook Mall T325, Vancouver, BC, V6T 2B5, Canada.
Mo KhaleghiDepartment of Occupational Science and Occupational Therapy, The University of British Columbia, 2211 Wesbrook Mall T325, Vancouver, BC, V6T 2B5, Canada.
Marco ZenoneDepartment of Occupational Science and Occupational Therapy, The University of British Columbia, 2211 Wesbrook Mall T325, Vancouver, BC, V6T 2B5, Canada.
Nikki OwDepartment of Occupational Science and Occupational Therapy, The University of British Columbia, 2211 Wesbrook Mall T325, Vancouver, BC, V6T 2B5, Canada.
Adelena LeonDepartment of Occupational Science and Occupational Therapy, The University of British Columbia, 2211 Wesbrook Mall T325, Vancouver, BC, V6T 2B5, Canada.
Steve MathiasFoundry, 915-1045 Howe Street, Vancouver, BC, V6Z 2A9, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundIn Canada, the prevalence of mental health challenges is highest in young people aged 12-24. Mental health challenges frequently cause marked functional impairment. Despite this, we are unaware of any existing conceptualization and/or measures of function that has been developed from the perspective of young people. The objective of this paper is to develop a conceptual and measurement model, including a preliminary set of items, for an outcome measure of function for young adults accessing mental health services.

methodsWe conducted this study in three phases. In phase 1, we conducted three focus groups to conceptualize function as a construct from the perspective of young adults. In phase 2, we co-designed a set of items with youth (n = 4) to capture the construct. In phase 3, we invited young people (n = 12) accessing mental health services to complete workbooks and participate in one of two focus groups to evaluate whether items were clear, captured function comprehensively, and were relevant. We transcribed and compiled all data to eliminate, refine and generate new items.

resultsIn phase 1, a conceptual model of function was developed with three main themes: basic needs, roles and responsibilities, and social connections. In phase 2, 97 candidate items were developed, and in phase 3, a candidate pool of 50 items resulted for psychometric testing.

conclusionThis youth-centred conceptualization of function and preliminary item bank has the potential to advance person-centred care, outcomes, and experiences for youth seeking mental health services.

Indexed as

FunctionMental healthSubstance useYoung adultsYouth

Identifiers

PMID36057736
PMCPMC9440742

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.