ArticleResearch involvement and engagement2022
Public Interest Group on Cancer Research: a successful patient-researcher partnership in Newfoundland and Labrador.
Article in Research involvement and engagement, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
7 citing papers in PubMed, 10 citations in OpenAlex.
- Lived experience leadership in cancer research: a scoping review of conceptual definitions, roles, responsibilities, and impacts.Journal of cancer survivorship : research and practice · 2026Review
- Social and Workplace Experiences of Individuals with a History of Cancer in Newfoundland and Labrador.Current oncology (Toronto, Ont.) · 2026Article
- Podcasting and Blogging as Tools to Engage with the Public on the Topic of Cancer: Experience and Perspectives of the Public Interest Group on Cancer Research.Current oncology (Toronto, Ont.) · 2025Article
- Barriers and Facilitators to the Recruitment and Engagement of Diverse Populations Into Patient and Family Advisory Councils: A Scoping Review.Journal of patient experience · 2025Article
- Lowe Syndrome and Me: a co-creation video series connecting patients, caregivers, and researchers.Frontiers in cell and developmental biology · 2025Article
- Whose Responsibility Is It? Implementing Patient-Prioritized Healthcare System Change in Oncology.Current oncology (Toronto, Ont.) · 2024Article
- Patient Advisory Committee Engagement in a Precision Medicine-Focused Public Oncology Conference: Case Report of Lessons Learned.Journal of primary care & community healthArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors at 1 institution in 1 country.
Funding
Abstract
backgroundPartnering with patients and family members affected by cancer is essential for meaningful research, public engagement and outreach, and advocacy activities.
objectiveOur objective was to create a public interest group through an academic-community partnership focused on cancer research and public engagement.
methodsA purposeful recruitment process was implemented to ensure a diverse and inclusive group. The group meets virtually and communicates by email. The group's activities focus on identifying the needs, priorities, and interests of cancer-affected individuals in the province; consultations; and designing research projects and public outreach activities together. Comprehensive meeting minutes are kept and used to distill discussion points. The work of the group is disseminated through a variety of channels.
resultsThe public interest group includes 12 cancer patient and family member representatives, in addition to researchers. Discussions by the interest group identified key themes related to: (1) equity issues and regional disparity in provincial oncocare; (2) information needs; (3) need for patient empowerment and public understanding; and (4) family member and partner needs and experiences. To date, the group has co-designed a cancer research proposal and a public engagement/outreach activity. The group also provides consultations on cancer-related projects/public engagement activities and members act as patient partners in specific research and public engagement proposals. The group evolves over time, and increasingly advocates on behalf of cancer patients and families. Retention and satisfaction of the public partners with group activities have been high. The group's work and findings are disseminated to the Provincial Cancer Care Program, as well as to public and scientific stakeholders through local media, academic conferences and presentations, and a dedicated website.
conclusionPublic Interest Group on Cancer Research represents a highly successful patient-researcher partnership in oncology. It designs meaningful and patient-oriented studies and outreach activities in cancer. It also elevates and widely supports cancer patient and family voice.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.