Evidence map›Paper›PMID 36057375›Full record

ArticleContemporary clinical trials2022

Study protocol for a hybrid effectiveness-implementation trial of the Building Better Caregivers online workshop for rural family/friend caregivers of people living with dementia.

Jasmine Santoyo-Olsson, Kate Lorig, Elizabeth Macias Romo, Maritza Luzanilla, Giselle Aguayo Ramirez, Jing Cheng, Catherine Chesla, Kenneth E Covinsky, Leah Karliner, Dolores Gallagher Thompson and 2 more

Registry-linked trialOpen access · hybridAbstract readClinical Trial Protocol
PubMed Full text at PMC Publisher
In one paragraph

Article in Contemporary clinical trials, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06928467 (Primary Care-based Pilot ePCT of an Online Workshop for Family Caregivers of PLWD), which is not on this map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
1.4field-weighted citation impact, top 17% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06928467 nacompletednot on this mapstarted 2025, after this paper: background citation

Primary Care-based Pilot ePCT of an Online Workshop for Family Caregivers of PLWD

TypeinterventionalSponsorUniversity of California, San FranciscoRan2025 to 2026Enrolled109ConditionsFamily Caregivers, Dementia, Self-management, DepressionArmsBuilding Better Caregivers workshop
3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 5 citations in OpenAlex.

  1. Trial
  2. Trial
  3. Article
  4. Article
  5. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors at 4 institutions in 1 country.

Jasmine Santoyo-OlssonUniversity of California San Francisco, San Francisco, CA, USA. Electronic address: jasmine.santoyo-olsson@ucsf.edu.
Kate LorigStanford University, Palo Alto, CA, USA.
Elizabeth Macias RomoUniversity of California San Francisco, San Francisco, CA, USA.
Maritza LuzanillaUniversity of California San Francisco, San Francisco, CA, USA.
Giselle Aguayo RamirezUniversity of California San Francisco, San Francisco, CA, USA.
Jing ChengUniversity of California San Francisco, San Francisco, CA, USA.
Catherine CheslaUniversity of California San Francisco, San Francisco, CA, USA.
Kenneth E CovinskyUniversity of California San Francisco, San Francisco, CA, USA; San Francisco VA Healthcare System, San Francisco, CA, USA.
Leah KarlinerUniversity of California San Francisco, San Francisco, CA, USA.
Dolores Gallagher ThompsonStanford University, Palo Alto, CA, USA.
Nancy FahrenwaldTexas A&M University, Bryan, TX, USA.
Veronica YankUniversity of California San Francisco, San Francisco, CA, USA.
University of California, San Francisco · USPalo Alto University · USStanford University · USTexas A&M University · US

Funding

Evaluating the Effectiveness of an Online Small-Group Self-Management Workshop for Rural Caregivers of Individuals with Alzheimer Disease and Related DementiasR01AG057855 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI YANK, VERONICA · 2018 to 2022
$3.9M
NIA NIH HHS R01 AG057855
6 · The paper itself

Abstract

introductionDementia caregiving is complex and disproportionally burdens caregivers living in rural areas due to fewer resources and formal support systems. There is an immediate need to identify effective, scalable, and accessible online programs to support rural caregivers' well-being. Building Better Caregivers (BBC), a possible solution, is an asynchronous online 6-week, interactive, and skills-building workshop developed for caregivers of persons with dementia. This research aims to assess the effectiveness and implementation of the BBC workshop when delivered among rural dementia caregivers in the United States.

methodsA hybrid effectiveness and implementation trial applying mixed methods will be conducted in collaboration with local, state, and national partnering organizations. Eligible participants live in a rural area of the United States, give care at least 10 h a week for a family member or friend with dementia, and have internet access. Evaluation is based on the RE-AIM framework. Effectiveness outcomes are assessed using a randomized control trial. Caregivers are randomly assigned to the BBC workshop (intervention) or attention control group. Implementation outcomes are assessed using surveys and debriefing interviews from partnering organizations and participants. The study protocol including the study design, methods of recruitment and assessment, and outcomes are described.

conclusionThis is the first known study to evaluate both the effectiveness and implementation of a caregiver support intervention under real-world conditions in rural areas. If successful, this online workshop will be a practical and acceptable approach for promoting the health and well-being of geographically isolated rural dementia caregivers.

Indexed as

CaregiversDementiaFamilyFriendsHumansRandomized Controlled Trials as TopicSurveys and QuestionnairesCaregiver burdenCaregiversDementiaDepressionEffectivenessImplementationInternet-based interventionRuralSelf-management intervention

Identifiers

PMID36057375
PMCPMC10292579
OpenAlexW4293833985

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.