Evidence map›Paper›PMID 36056193›Full record

ArticleNephrology (Carlton, Vic.)2022

Perspectives of a proposed patient navigator programme for people with chronic kidney disease in rural communities: Report from national workshops.

Nicole Scholes-Robertson, Martin Howell, Simon A Carter, Karine E Manera, Andrea K Viecelli, Eric Au, Chanel Chong, Andrea Matus-Gonzalez, Anita van Zwieten, Donna Reidlinger and 4 more

Open access · hybridAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Nephrology (Carlton, Vic.), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
2.4field-weighted citation impact, top 12% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 13 citations in OpenAlex.

  1. Article
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  7. Inequities in kidney health and kidney care.Nature reviews. Nephrology · 2023
    Review
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  9. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors at 4 institutions in 1 country.

Nicole Scholes-RobertsonSydney School of Public Health, The University of Sydney, Camperdown, New South Wales, Australia.ORCID https://orcid.org/0000-0001-8260-0453
Martin HowellSydney School of Public Health, The University of Sydney, Camperdown, New South Wales, Australia.
Simon A CarterSydney School of Public Health, The University of Sydney, Camperdown, New South Wales, Australia.
Karine E ManeraSydney School of Public Health, The University of Sydney, Camperdown, New South Wales, Australia.ORCID https://orcid.org/0000-0002-0552-6074
Andrea K ViecelliAustralasian Kidney Trials Network, The University of Queensland, Brisbane, Queensland, Australia.
Eric AuSydney School of Public Health, The University of Sydney, Camperdown, New South Wales, Australia.
Chanel ChongSydney School of Public Health, The University of Sydney, Camperdown, New South Wales, Australia.
Andrea Matus-GonzalezSydney School of Public Health, The University of Sydney, Camperdown, New South Wales, Australia.
Anita van ZwietenSydney School of Public Health, The University of Sydney, Camperdown, New South Wales, Australia.ORCID https://orcid.org/0000-0003-4564-5825
Donna ReidlingerAustralasian Kidney Trials Network, The University of Queensland, Brisbane, Queensland, Australia.
Chad WrightAustralasian Kidney Trials Network, The University of Queensland, Brisbane, Queensland, Australia.ORCID https://orcid.org/0000-0001-9616-0508
Kelli OwenAustralia and New Zealand Dialysis and Transplant Registry, NIKTT (National Indigenous Kidney Transplant Taskforce), CNARTS (Central and Northern Adelaide Renal Transplant Service) SA Health and Medical Research Institute, University of Adelaide, Adelaide, South Australia, Australia.
Jonathan C CraigCollege of Medicine and Public Health, Flinders University, Adelaide, South Australia, Australia.
Allison TongSydney School of Public Health, The University of Sydney, Camperdown, New South Wales, Australia.ORCID https://orcid.org/0000-0001-8973-9538
The University of Sydney · AUThe University of Queensland · AUAustralia and New Zealand Dialysis and Transplant Registry · AUFlinders University · AU

Funding

National Health and Medical Research Council 1190850National Health and Medical Research Council 1196033
6 · The paper itself

Abstract

aimsPeople who live in rural areas have reduced access to appropriate and timely healthcare, leading to poorer health outcomes than their metropolitan-based counterparts. The aims of the workshops were to ascertain participants' perspectives on barriers to access to dialysis and transplantation, to identify and prioritize the roles of a rural patient navigator, to discuss the acceptability and feasibility of implementing this role and identify possible outcomes that could be used to measure the success of the programme in a clinical trial.

methodsRural patients (n = 19), their caregivers (n = 5) and health professionals (n = 18) from Australia participated in three workshops. We analysed the data using thematic analysis.

resultsWe identified four themes related to access to dialysis and transplantation: overwhelmed by separate and disconnected health systems, unprepared for emotional toll and isolation, lack of practical support and inability to develop trust and rapport. Four themes related to the role of the patient navigator programme: valuing lived experience, offering cultural expertise, requiring a conduit, and flexibility of the job description. The key roles prioritized by participants were psychological support and networking, provision/consolidation of education, and provision of practical support.

conclusionRural patients, caregivers and health professionals believed that programmes that include navigators with lived experience of dialysis and kidney transplantation and cultural expertise, especially for Aboriginal Australians, may have the potential to improve patient experiences in accessing healthcare.

Indexed as

Patient NavigationRenal Insufficiency, ChronicAustraliaClinical Trials as TopicHumansRenal DialysisRural Populationchronic kidney diseasedialysispatient navigatorruraltransplantation

Identifiers

PMID36056193
PMCPMC9826117
OpenAlexW4294485498

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.