ArticleResearch and practice in thrombosis and haemostasis2022
Socioeconomic participation of persons with hemophilia: Results from the sixth hemophilia in the Netherlands study.
Article in Research and practice in thrombosis and haemostasis, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
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Who cites it
6 citing papers in PubMed, 10 citations in OpenAlex.
- Haemophilia B: an illustrative review of current challenges and opportunities.Research and practice in thrombosis and haemostasis · 2025Article
- Review
- The association between unemployment and treatment among adults with hemophilia.Research and practice in thrombosis and haemostasis · 2024Article
- Defining the impact of immune tolerance induction on clinically relevant outcomes in a US cohort of severe hemophilia A.Blood advances · 2024Article
- Patients' and health care providers' perspectives on quality of hemophilia care in the Netherlands: a questionnaire and interview study.Research and practice in thrombosis and haemostasis · 2023Article
- Socioeconomic participation of persons with hemophilia: Results from the sixth hemophilia in the Netherlands study.Research and practice in thrombosis and haemostasis · 2022Article
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Authors and funding
15 authors at 8 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background and objectives: Treatment availability and comprehensive care have resulted in improved clinical outcomes for persons with hemophilia. Recent data on socioeconomic participation in the Netherlands are lacking. This study assessed participation in education, in the labor market, and social participation for persons with hemophilia compared with the general male population. Methods: Dutch adults and children (5-75 years) of all hemophilia severities ( Results: Data from 906 adults and children were analyzed. Participation in education of 20 to 24 year olds was 68% (general male population: 53%). Educational attainment was higher compared with Dutch males, especially for severe hemophilia. Absenteeism from school was more common than in the general population. The employment-to-population ratio and occupational disability were worse for severe hemophilia than in the general population (64.3% vs. 73.2% and 14.7% vs. 4.8%, respectively), but similar for nonsevere hemophilia. Unemployment was 5.4% (general male population: 3.4%). Absenteeism from work was less common (38% vs. 45.2%). Mean PROMIS score was similar to or higher than in the general population (54.2; SD 8.9 vs. 50; SD 10). Conclusion: Socioeconomic participation of persons with nonsevere hemophilia was similar to the general male population. Some participation outcomes for persons with severe hemophilia were reduced.
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