Evidence map›Paper›PMID 36050645›Full record

Observational studyBMC geriatrics2022

Differences and commonalities of home-based care arrangements for persons living with dementia in Germany - a theory-driven development of types using multiple correspondence analysis and hierarchical cluster analysis.

Jan Dreyer, Johannes Michael Bergmann, Kerstin Köhler, Iris Hochgraeber, Christiane Pinkert, Martina Roes, Jochen René Thyrian, Henrik Wiegelmann, Bernhard Holle

Open access · goldAbstract readObservational Study
In one paragraph

Observational study in BMC geriatrics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 2 pooled it
3.3field-weighted citation impact, top 8% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 2 syntheses or guidelines pooled it, 14 citations in OpenAlex.

  1. Pooled it
  2. Pooled it
  3. Article
  4. Review
  5. Article
  6. Article
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 2 institutions in 1 country.

Jan DreyerDeutsches Zentrum für Neurodegenerative Erkrankungen (DZNE), site Witten, Witten, Germany. Jan.Dreyer@dzne.de.
Johannes Michael BergmannDeutsches Zentrum für Neurodegenerative Erkrankungen (DZNE), site Witten, Witten, Germany.
Kerstin KöhlerDeutsches Zentrum für Neurodegenerative Erkrankungen (DZNE), site Witten, Witten, Germany.
Iris HochgraeberDeutsches Zentrum für Neurodegenerative Erkrankungen (DZNE), site Witten, Witten, Germany.
Christiane PinkertDeutsches Zentrum für Neurodegenerative Erkrankungen (DZNE), site Witten, Witten, Germany.
Martina RoesDeutsches Zentrum für Neurodegenerative Erkrankungen (DZNE), site Witten, Witten, Germany.
Jochen René ThyrianDeutsches Zentrum für Neurodegenerative Erkrankungen (DZNE), site Rostock/Greifswald, Greifswald, Germany.
Henrik WiegelmannInstitute for Public Health and Nursing Research, Health Sciences Bremen, University of Bremen, Bremen, Germany.
Bernhard HolleDeutsches Zentrum für Neurodegenerative Erkrankungen (DZNE), site Witten, Witten, Germany.
German Center for Neurodegenerative Diseases · DEUniversity of Bremen · DE

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundMost persons with dementia live at home and want to stay there as long as possible. In most cases, informal carers such as spouses or children care for them. Together with other family members and professional carers, they form care arrangements to address the complex needs of persons with dementia. One major aim of informal carers is to keep the care arrangement stable. The middle-range theory of 'stability of home-based care arrangements for people living with dementia' (SoCA-Dem theory) offers a theory to understand what constitutes and influences the stability of home-based care arrangements. Based on this theory, the aim of this study was to (1) uncover the underlying structures of differences and commonalities of home-based care arrangements for persons living with dementia, (2) construct types of these care arrangements, and (3) compare these types with regard to their stability.

methodThis is a secondary analysis of data from a convenience sample of n = 320 care arrangements for persons with dementia obtained in the observational DemNet-D study. Data were analysed using multiple correspondence analysis and hierarchical cluster analysis. Sociodemographic data and variables related to the structure of the care arrangement (D-IVA), burden of the informal carer (BICS-D), dementia severity (FAST), and quality of life of the person with dementia (QOL-AD) were included.

resultsThe multiple correspondence analysis identified 27 axes that explained the entire variance between all care arrangements. The two axes 'dementia and care trajectory' and 'structure of the dyadic relationship' best distinguished care arrangements from each other and together explained 27.10% of the variance. The subsequent cluster analysis identified four types of care arrangements. Two types included spouse-centred care arrangements, and two types included child-centred care arrangements at different phases of the dementia and care trajectory. The types differ with regard to their stability.

conclusionThe results highlight the heterogeneity and commonality of care arrangements for persons living with dementia. They contribute to a better understanding of informal dementia home care. Furthermore, the results can guide the development of tailored support for persons living with dementia and their caring families.

Indexed as

DementiaHome Care ServicesCaregiversCluster AnalysisGermanyHumansQuality of LifeAgeing in placeAlzheimer’s diseaseCare arrangementDementiaFamily caregiverHierarchical cluster analysisMultiple correspondence analysesSecondary analysesTypology

Identifiers

PMID36050645
PMCPMC9438141
OpenAlexW4294215024

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.