ArticleNursing open2023
Family caregivers' experiences of caring for neonates undergoing enterostomy in China: A qualitative study.
Article in Nursing open, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed, 9 citations in OpenAlex.
- Neonatal single-site divided colostomy in anorectal malformation.Pediatric surgery international · 2026Article
- Article
- Injectable Hyaluronic Acid and Amino Acids Complex for Pediatric Hard-to-Heal Wounds: A Prospective Case Series and Therapeutic Protocol.Children (Basel, Switzerland) · 2025Article
- Uncertainties in the NICU: a scoping review to inform a tailored taxonomy.Journal of perinatology : official journal of the California Perinatal Association · 2025Article
- Impact of a visual mobile terminal-based continuity of care model on caregiver competence of children with enterostomies.World journal of gastrointestinal surgery · 2025Article
- Caregiving experiences of family caregivers of disabled middle-aged and older adults enrolled in long-term care insurance: a qualitative study.BMC nursing · 2025Article
- Family caregivers' experiences of caring for neonates undergoing enterostomy in China: A qualitative study.Nursing open · 2023Article
Corrections and comments
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
aimTo describe the nursing experiences and care needs of family caregivers caring for neonates with enterostomies in China.
designA qualitative study.
methodsWe conducted semi-structured interviews with family caregivers who care for neonates undergoing enterostomy. Family caregivers were selected using a purposive sampling method from three children's hospitals until no new data were generated (N = 26). Data analysis applied the thematic analysis method. The caregivers' experiences were described using qualitative content analysis.
resultsThe experience of family caregivers was described as growing in adaptation, where five main themes emerged: (1) complex emotional responses; (2) uncertainty about everything; (3) lack of confidence, anxiety and helplessness; (4) eagerness for professional support; (5) active adaptation, gain-harvest and gain-growth. These findings increased understanding and added knowledge on this topic that is rarely studied in China. Healthcare authorities and professionals should recognize and understand the lives and situations of family caregivers (whose neonates undergo enterostomy) to better identify their difficulties and needs.
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