ArticleJournal of eating disorders2022
Creating a care pathway for patients with longstanding, complex eating disorders.
Article in Journal of eating disorders, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.
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Who cites it
24 citing papers in PubMed, 37 citations in OpenAlex.
- Reflections on the role of Peer Researchers in eating disorders: identifying challenges, best practices, and future directions.Journal of eating disorders · 2026Article
- "We might be making mistakes, but we're learning, we're trying, and we're listening": embedding qualitative methods within the plan-do-study-act cycle to support the development of a pilot multidisciplinary ARFID pathway.Journal of eating disorders · 2026Article
- Do new labels solve old problems? Conceptual, ethical, and clinical challenges of constructing restrictive eating behaviours as "self-harm".Journal of eating disorders · 2026Article
- A person-centred and data-driven approach to phenotyping anorexia nervosa.Journal of eating disorders · 2026Article
- Key features of illness and treatment experiences in longstanding anorexia nervosa: qualitative descriptive study.BJPsych open · 2025Article
- Beyond traditional models: a content analysis exploring the applicability of harm reduction in eating disorder care.Journal of eating disorders · 2025Article
- Barriers and facilitators to treatment in severe and enduring eating disorders: a mixed-methods study of access, engagement, and lived experience.Journal of eating disorders · 2025Article
- A shift or a substitution? On naming, exclusion, and co-production in longstanding eating disorders: matters arising from Lubieniecki et al. (2025).Journal of eating disorders · 2025Article
- 'It's the perfect storm': why are people with eating disorders at risk of suicide? A qualitative study.BMC medicine · 2025Article
- Childhood maltreatment and longitudinal trajectories of disordered eating behaviors: sociodemographic moderators and behavior-specific sensitivity analyses.Journal of eating disorders · 2025Article
- Optimising Psychosocial Interventions for People With Severe and Enduring Eating Disorders (SEED) Perspectives of Healthcare Professionals in Ireland: A Qualitative Study.International journal of mental health nursing · 2025Article
- Patient and carer feedback and engagement with ECHOMANTRA, a digital guided intervention for anorexia nervosa.European eating disorders review : the journal of the Eating Disorders Association · 2025Article
- Redefining prevention and early intervention to include longstanding and severe eating disorders.Journal of eating disorders · 2025Article
- Applying integrated enhanced cognitive behaviour therapy (I-CBTE) to severe and longstanding eating disorders (SEED) Paper 2: An in-depth case study for clinicians.Journal of eating disorders · 2024Article
- Improving adult inpatient eating disorder treatment: perspectives of a sample of individuals in Canada with lived experience.Journal of eating disorders · 2024Article
- Harm reduction in severe and long-standing Anorexia Nervosa: part of the journey but not the destination-a narrative review with lived experience.Journal of eating disorders · 2024Review
- Two identical twin pairs discordant for longstanding anorexia nervosa and OSFED: lived experience accounts of eating disorder and recovery processes.Journal of eating disorders · 2024Article
- Clinical care for severe and persistent eating disorders in pediatric populations: Perspectives of health professionals.Journal of eating disorders · 2024Article
- Ethical implications of defining longstanding anorexia nervosa.Journal of eating disorders · 2024Article
- Discordant conceptualisations of eating disorder recovery and their influence on the construct of terminality.Journal of eating disorders · 2024Article
Corrections and comments
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundRecovery rates for people with eating disorders are low; fewer than half recover and approximately 20% develop a longstanding eating disorder. Patients with longstanding eating disorders are often referred to as "SEED" (severe and enduing eating disorders) although this remains controversial and is not acknowledged in the British treatment guidance. This project aimed to generate recommendations for a longstanding eating disorder care pathway by identifying what proportion of patients have longstanding eating disorders and how to best identify and support them.
methodsInitially, a literature review was completed, followed by interviews with service-users who consider themselves to have longstanding eating disorders, and focus groups with staff members. The results were combined to create a definition of a longstanding eating disorder which was used to establish how many service-users could benefit from the pathway. The qualitative data was used to produce recommendations for a tailored pathway for those with longstanding eating disorders.
resultsThe results highlighted that, although "SEED" is often used, participants preferred to be referred to as "longstanding" or having no label. Qualitative analysis identified four themes in relation to supporting this population group which described how to structure the service and individualise care, as well as patients' relationship to the service, and how to build a life after eating disorder services.
conclusionsRecommendations included promoting a hopeful message, focusing on quality of life and introducing peer support. Crucially, accessing the pathway should not result in being labelled "SEED", nor should it prevent access to recovery focused interventions including weight restoration. The full list of recommendations are included as well as the implications of the project and limitations.
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