ArticleResearch involvement and engagement2022
Activities and impacts of patient engagement in CIHR SPOR funded research: a cross-sectional survey of academic researcher and patient partner experiences.
Article in Research involvement and engagement, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
22 citing papers in PubMed, 40 citations in OpenAlex.
- Creating shared vision in patient partnered research: a case example of patient engagement from the PAVE project (producing an arthritis value framework with economic evidence: paving the way for rare childhood disease).Research involvement and engagement · 2026Article
- Review
- How Patients Shape Healthcare: Then, Now and What's to Come?Journal of advanced nursing · 2026Article
- A novel framework for operationalising patient and public involvement: lessons from designing an AI-informed exercise prescription grant.Research involvement and engagement · 2025Article
- Exploring Patient and Caregiver Perceptions of the Facilitators and Barriers to Patient Engagement in Research: Participatory Qualitative Study.Journal of participatory medicine · 2025Article
- Development and validation of the UserInvolve comprehensive toolkit for evaluating co-production in research: A guiding resource for researchers.Research involvement and engagement · 2025Article
- Advancing patient-led research and establishing a national IBD patient partner network in Canada: a call to action.Journal of the Canadian Association of Gastroenterology · 2025Article
- A Training Program to Support Patient Engagement in Primary Health Care Research: Co-Design, Implementation, and Evaluation Study.Journal of participatory medicine · 2025Article
- Patient engagement strategies in digital health interventions for cancer survivors: A scoping review.PLOS digital health · 2025Article
- Article
- Article
- Establishing patient partners' roles on research teams: a scoping review.Research involvement and engagement · 2024Article
- The Use of Arts-Based Methods to Enhance Patient Engagement in Health Research.Health expectations : an international journal of public participation in health care and health policy · 2024Review
- Advancing Research Alongside Patient Partners: Next-Generation Best Practices for Effective Collaboration in Health Research.Current oncology (Toronto, Ont.) · 2024Article
- Article
- Engaging patient and community stakeholders in the optimization of the Compassionate And Loving Mindset towards heart health risk (CALM Hearts) physical activity intervention: a description of initial work and protocol for future engagement activities.Research involvement and engagement · 2024Article
- Future directions for patient engagement in research: a participatory workshop with Canadian patient partners and academic researchers.Health research policy and systems · 2024Article
- Engaging people with lived experience of dementia in research meetings and events: insights from multiple perspectives.Frontiers in dementia · 2024Article
- Evaluating the impact of engaging older adults and service providers as research partners in the co-design of a community mobility-promoting program: a mixed methods developmental evaluation study.Research involvement and engagement · 2023Article
- Understanding the Current Landscape of Kidney Disease in Canada to Advance Precision Medicine Guided Personalized Care.Canadian journal of kidney health and disease · 2023Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 6 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundKnowledge about the specific engagement activities pursued and associated impacts of patient engagement in research in Canada remains nascent. This study aimed to describe engagement activities and perceived impacts of projects funded by the Strategy for Patient-Oriented Research (SPOR).
methodsThis was a cross-sectional online survey of academic researchers and patient partners engaging in projects funded through 13 SPOR funding calls (2014-2019). Patient engagement activities and impacts were measured using a self-developed survey. Thematic analysis was used to describe engagement activities and impacts.
results66 of 511 academic researchers and 20 of 28 patient partners contacted completed the survey and were included in analyses. Respondents reported that patient partners were engaged in seven types of activities across the research cycle: (a) sharing experiences/giving advice, (b) identifying the research focus/methods, (c) developing/revising aspects of the project, (d) conducting research activities, (e) study participation, (f) presenting on behalf of the project, and (g) other grant development or knowledge translation activities. Engagement was associated with six different types of impacts related to knowledge, outputs, or directions being (a) created, (b) moulded, (c) confirmed, or (d) chosen/prioritized, (e) perceived success of the research, and (f) minimal/negative impacts on the research.
conclusionsThis study presents information on different ways that patient partners were engaged in SPOR-funded research and the potential impacts of these activities. This knowledge base is imperative to the future of patient engagement in research, including the planning and evaluation of future studies that engage patients as active shapers of research.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.