ArticleEuropean heart journal2022
Last year of life of adults with congenital heart diseases: causes of death and patterns of care.
Article in European heart journal, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
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Who cites it
20 citing papers in PubMed.
- Life-Course Noncardiac Comorbidity Burden and Mortality in Lower-Complexity Congenital Heart Disease.JACC. Advances · 2026Article
- Resilience and comfort with advance care planning among adult outpatients with congenital heart disease.International journal of cardiology. Congenital heart disease · 2026Article
- Care Needs of Patients With Chronic Cardiovascular Diseases: An Integrative Review.Health science reports · 2026Review
- Trigger Criteria for Advance Care Planning in Adults With Congenital Heart Disease: A Systematic Review.CJC pediatric and congenital heart disease · 2026Review
- National Trends and Disparities in Congenital Heart Disease Mortality in the United States, 1999-2024.Pediatric cardiology · 2026Article
- Who will be our adult congenital heart disease patient tomorrow?European heart journal supplements : journal of the European Society of Cardiology · 2026Article
- Critical Care of the Adult With Congenital Heart Disease.JACC. Advances · 2025Review
- Clinical Profiles and Outcomes of Adult Congenital Heart Disease Patients in the Cardiac Intensive Care Unit.JACC. Advances · 2025Article
- Management of anticoagulation in patients with atrial fibrillation and renal dysfunction: A systematic review.World journal of experimental medicine · 2025Article
- The complications of cyclosporine a in pediatric use and its effectiveness in treating pediatric congenital heart diseases-a meta analysis in combined with a retrospective clinical study.Frontiers in pharmacology · 2025Article
- Healthcare use and costs in the last six months of life by level of care and cause of death.BMC health services research · 2024Article
- Outcomes after cancer diagnosis in children and adult patients with congenital heart disease in Sweden: a registry-based cohort study.BMJ open · 2024Article
- Comparison in the adult congenital heart disease severity classification of ACC/AHA and ESC guidelines in a 3,459 Mexican population.International journal of cardiology. Congenital heart disease · 2024Article
- Discovery ofAmerican journal of translational research · 2024Article
- Discovery and functional investigation ofAmerican journal of translational research · 2024Article
- Mental health in adult congenital heart disease.International journal of cardiology. Congenital heart disease · 2023Review
- Cancer risk in adult congenital heart disease.International journal of cardiology. Congenital heart disease · 2023Review
- Outcome of Down patients with repaired versus unrepaired atrioventricular septal defect.International journal of cardiology. Congenital heart disease · 2023Article
- Pharmacological therapy in adult congenital heart disease with coronary artery disease and atrial fibrillation.International journal of cardiology. Congenital heart disease · 2023Review
- Discovery ofBiology · 2023Article
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Authors and funding
15 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
aimsAlthough life expectancy in adults with congenital heart diseases (CHD) has increased dramatically over the past five decades, still a substantial number of patients dies prematurely. To gain understanding in the trajectories of dying in adults with CHD, the last year of life warrants further investigation. Therefore, our study aimed to (i) define the causes of death and (ii) describe the patterns of healthcare utilization in the last year of life of adults with CHD. METHODS AND
resultsThis retrospective mortality follow-back study used healthcare claims and clinical data from BELCODAC, which includes patients with CHD from Belgium. Healthcare utilization comprises cardiovascular procedures, CHD physician contacts, general practitioner visits, hospitalizations, emergency department (ED) visits, intensive care unit (ICU) admissions, and specialist palliative care, and was identified using nomenclature codes. Of the 390 included patients, almost half of the study population (45%) died from a cardiovascular cause. In the last year of life, 87% of patients were hospitalized, 78% of patients had an ED visit, and 19% of patients had an ICU admission. Specialist palliative care was provided to 17% of patients, and to only 4% when looking at the patients with cardiovascular causes of death.
conclusionsThere is a high use of intensive and potentially avoidable care at the end of life. This may imply that end-of-life care provision can be improved. Future studies should further examine end-of-life care provision in the light of patient's needs and preferences, and how the healthcare system can adequately respond.
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