ArticleEuropean journal of cancer care2022
The gap between expectations and reality: A qualitative study of psychosocial challenges of young childhood cancer survivors from the PACCS study.
Article in European journal of cancer care, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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Who cites it
11 citing papers in PubMed.
- The experiences of a structured pelvic floor rehabilitation program in colorectal cancer survivors with low anterior resection syndrome: A qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Physical activity behaviors and screen time in young childhood cancer survivors: the Physical Activity in Childhood Cancer Survivors Study.Journal of cancer survivorship : research and practice · 2026Article
- Perspectives of Adolescents and Young Adults, Caregivers, and Health Care Providers on Regional Cancer Care: Qualitative Study.JMIR cancer · 2026Article
- How Classmates Experience Visiting Their Hospitalised Peer During Cancer Treatment: A RESPECT Study.Journal of advanced nursing · 2026Article
- The Journey with paediatric cancer: reflections on its impact on patients and their families.The Pan African medical journal · 2026Article
- Childhood cancer survivors' struggle for social integration after treatment a mixed-methods exploration of activity and participation.PloS one · 2026Article
- Network Activeoncokids - Centralized Physical Activity Counseling for Children, adolescents, and Young Adults Across German-Speaking Countries Throughout All Oncological Treatment Phases.Klinische Padiatrie · 2024Article
- Online Ambassador Visits for Hospitalized Children With Cancer: Qualitative Evaluation of Implementation.JMIR pediatrics and parenting · 2024Article
- Article
- Lost in the loop - a qualitative study on patient experiences of care in standardized cancer patient pathways.BMC health services research · 2023Article
- The gap between expectations and reality: A qualitative study of psychosocial challenges of young childhood cancer survivors from the PACCS study.European journal of cancer care · 2022Article
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Authors and funding
9 authors.
Funding
Abstract
objectiveIn this sub-study from the 'PACCS' study, we explored the psychosocial experiences of children and adolescents in everyday life post-cancer treatment and the possible factors that can moderate these experiences.
methodsThis is a qualitative explorative study using semi-structured interviews with 43 childhood cancer survivors between the ages of nine and 18 from Norway and Denmark. We conducted a secondary thematic analysis using Malterud's systematic text condensation.
resultsTwo main themes were identified: 'The post-treatment gap between expectations and reality' comprised two subthemes: (1) lack of mastery and feeling different and (2) lack of understanding and acceptance. The second main theme, 'Managing the gap', comprised three subthemes: (1) information and knowledge, (2) adjustments and adaptions and (3) social support and openness. The findings reveal that the psychosocial challenges resulted from the remaining ability gap(s). Measures such as tailored information, school adjustments and social support were potential dynamic factors affecting the gap(s) positively or negatively. Psychosocial challenges post-treatment are experiences of lack of acceptance and understanding from others.
conclusionTo safeguard a positive transition back to everyday life, health care providers should support the survivors' psychosocial care, including getting back to school and re-entering social interactions.
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