ArticleInternational journal of environmental research and public health2022
"No One Truly Understands What We Go through and How to Treat It": Lived Experiences with Medical Providers among Patients with Orofacial Pain.
Article in International journal of environmental research and public health, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
11 citing papers in PubMed, 1 synthesis or guideline pooled it.
- A patient journey map based on the experience of temporomandibular disorders patients: a qualitative systematic review and meta-synthesis.Frontiers in public health · 2026Pooled it
- Dental Students' Temporomandibular Disorder-Related Education, Knowledge, Attitudes, and Behavior, How Do Personal Experiences Matter?Journal of dental education · 2026Article
- Coping strategies used by individuals with chronic orofacial pain: A qualitative study.Journal of health psychology · 2026Article
- The past, present, and future of temporomandibular disorders in predoctoral curriculum: historical perspectives and what comes next.Journal of oral & facial pain and headache · 2026Review
- Preferences and Participation Factors of a Web-Based Mind-Body Intervention for Chronic Orofacial Pain: A Qualitative Study.Journal of pain research · 2026Article
- Contributing factors for a satisfying orofacial pain patient journey: a mixed-methods study.Journal of oral & facial pain and headache · 2025Article
- Development of a Novel Web-Based Intervention Targeting Pain-Related Outcomes in Individuals With Chronic Orofacial Pain: Protocol for a Mixed Methods Study.JMIR research protocols · 2025Article
- "Optimizing Wellness and Neurorehabilitation with Mindfulness (OWNMindfulness)": feasibility of a novel mindfulness-based rehabilitation intervention for Persisting Symptoms after Concussion.Disability and rehabilitation · 2025Article
- Suicidal Ideation and Self-Injury in Trigeminal Neuralgia.Journal of pain research · 2025Article
- Anxiety, pain catastrophizing, and pain outcomes among older adults with chronic orofacial pain.Journal of behavioral medicine · 2024Article
- Trigeminal neuralgia.Nature reviews. Disease primers · 2024Review
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
Orofacial pain affects 10-15% of adults, yet treatments are limited. The gaps in care are frustrating for both patients and providers and can negatively impact patient-provider interactions. These interactions are key because they impact patient-reported outcomes and satisfaction with care. PURPOSE: Our study aims to understand the nuanced experiences with medical providers among patients with orofacial pain.
methodsIn a cross-sectional survey, 260 patients provided written responses describing their experiences with medical providers. Using an inductive-deductive approach to thematic analysis, we identified themes and subthemes and organized them into four domains based on the Patient-Centered Model of Communication.
resultsPatients reported feeling hopeless about treatment options, frustrated with lack of provider knowledge, disappointed in ineffective care, and stigmatized and dismissed by providers. Patients also said they learned to advocate for their health, were grateful for effective care, and felt lucky when providers listened and showed compassion. Patients identified key barriers that interfere with care (e.g., insurance, transportation, limited providers, lack of team coordination).
conclusionsFindings can help inform training programs and psychoeducation that target patient-provider communication to improve patient-reported outcomes, the quality of care delivered, and health care utilization and costs.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.