Evidence map›Paper›PMID 36011989›Full record

ArticleInternational journal of environmental research and public health2022

Community Engagement and Psychometric Methods in Aboriginal and Torres Strait Islander Patient-Reported Outcome Measures and Surveys-A Scoping Review and Critical Analysis.

Courtney Ryder, Jacqueline H Stephens, Shahid Ullah, Julieann Coombes, Nayia Cominos, Patrick Sharpe, Shane D'Angelo, Darryl Cameron, Colleen Hayes, Keziah Bennett-Brook and 1 more

Open access · goldAbstract readScoping Review
In one paragraph

Article in International journal of environmental research and public health, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 1 pooled it
0.3field-weighted citation impact, top 40% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 1 synthesis or guideline pooled it, 3 citations in OpenAlex.

  1. Equity, evidence and indigenous knowledges in PROMs in Australian injury research: a systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Pooled it
  2. Review
  3. Article
  4. Article
  5. Psychometric properties, and cultural appropriateness, of patient reported outcome measures for use in primary healthcare: a scoping review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Article
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 4 institutions in 2 countries.

Courtney RyderCollege of Medicine and Public Health, Flinders University, Adelaide, SA 5001, Australia.
Jacqueline H StephensCollege of Medicine and Public Health, Flinders University, Adelaide, SA 5001, Australia.ORCID 0000-0002-7278-1374
Shahid UllahCollege of Medicine and Public Health, Flinders University, Adelaide, SA 5001, Australia.
Julieann CoombesThe George Institute for Global Health Australia, University of New South Wales (UNSW), Missenden Rd., Sydney, NSW 2052, Australia.ORCID 0000-0001-7212-8693
Nayia CominosCollege of Medicine and Public Health, Flinders University, Adelaide, SA 5001, Australia.ORCID 0000-0001-6850-2734
Patrick SharpeFar West Community Partnerships, Ceduna, SA 5690, Australia.
Shane D'AngeloCollege of Medicine and Public Health, Flinders University, Adelaide, SA 5001, Australia.
Darryl CameronMoorundi Aboriginal Community Controlled Health Service, Lot 1 Wharf Road, Murray Bridge, SA 5253, Australia.
Colleen HayesCollege of Medicine and Public Health, Flinders University, Adelaide, SA 5001, Australia.
Keziah Bennett-BrookThe George Institute for Global Health Australia, University of New South Wales (UNSW), Missenden Rd., Sydney, NSW 2052, Australia.
Tamara MackeanCollege of Medicine and Public Health, Flinders University, Adelaide, SA 5001, Australia.
Flinders University · AUUNSW Sydney · AUCommunity Partners · USVictorian Aboriginal Health Service · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

(1) Background: In healthcare settings, patient-reported outcome measures (PROMs) and surveys are accepted, patient-centered measures that provide qualitative information on dimensions of health and wellbeing. The level of psychometric assessment and engagement with end users for their design can vary significantly. This scoping review describes the psychometric and community engagement processes for PROMs and surveys developed for Aboriginal and Torres Strait Islander communities. (2) Methods: The PRISMA ScR guidelines for scoping reviews were followed, aimed at those PROMs and surveys that underwent psychometric assessment. The Aboriginal and Torres Strait Islander Quality Appraisal Tool and a narrative synthesis approach were used. (3) Results: Of 1080 articles, 14 were eligible for review. Most articles focused on a validity assessment of PROMs and surveys, with reliability being less common. Face validity with Aboriginal and Torres Strait Islander communities was reported in most studies, with construct validity through exploratory factor analyses. Methodological design risks were identified in the majority of studies, notably the absence of explicit Indigenous knowledges. Variability existed in the development of PROMs and surveys for Aboriginal and Torres Strait Islander communities. (4) Conclusions: Improvement in inclusion of Indigenous knowledges and research approaches is needed to ensure relevance and appropriate PROM structures. We provide suggestions for research teams to assist in future design.

Indexed as

Australian Aboriginal and Torres Strait Islander PeoplesCommunity ParticipationHealth Services, IndigenousPatient Reported Outcome MeasuresPsychometricsHumansReproducibility of ResultsAboriginal and Torres Strait Islandermethodssurvey

Identifiers

PMID36011989
PMCPMC9407920
OpenAlexW4293780668

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.