Evidence map›Paper›PMID 36001482›Full record

ArticleAge and ageing2022

Dimensions of end-of-life preferences in the Swiss general population aged 55+.

Carmen Borrat-Besson, Sarah Vilpert, Ralf J Jox, Gian Domenico Borasio, Jürgen Maurer

Abstract read
In one paragraph

Article in Age and ageing, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Carmen Borrat-BessonSwiss Centre of Expertise in the Social Sciences (FORS), University of Lausanne, Lausanne, Switzerland.ORCID 0000-0002-8088-2810
Sarah VilpertSwiss Centre of Expertise in the Social Sciences (FORS), University of Lausanne, Lausanne, Switzerland.
Ralf J JoxPalliative and Supportive Care Service, Lausanne University Hospital and University of Lausanne, Lausanne, Switzerland.
Gian Domenico BorasioPalliative and Supportive Care Service, Lausanne University Hospital and University of Lausanne, Lausanne, Switzerland.
Jürgen MaurerFaculty of Business and Economics (HEC), University of Lausanne, Lausanne, Switzerland.

Funding

Understanding and Improving Healthcare Decision-Making and Outcomes for People Living with Alzheimer's Disease and Related DementiasP01AG005842 · NIA · NATIONAL BUREAU OF ECONOMIC RESEARCH · PI JOSEPH J DOYLE · 1986 to 2026
$56.5M
DEVELOPING AN ISRAELI VERSION OF THE HRS/SHARE PROJECTR21AG025169 · NIA · HEBREW UNIVERSITY OF JERUSALEM · PI LITWIN, HOWARD · 2004 to 2006
$297k
NIA NIH HHS HHSN271201300071CNIA NIH HHS P01 AG005842NIA NIH HHS R21 AG025169
6 · The paper itself

Abstract

backgroundunderstanding end-of-life preferences in the general population and how they are structured in people's minds is essential to inform how to better shape healthcare services in accordance with population expectations for their end of life and optimise communication on end-of-life care issues.

objectiveexplore key dimensions underlying end-of-life preferences in a nationally representative sample of adults aged 55 and over in Switzerland.

methodsrespondents (n = 2,514) to the Swiss version of the Survey of Health, Ageing and Retirement in Europe assessed the importance of 23 end-of-life items on a 4-point Likert scale. The factorial structure of the underlying end-of-life preferences was examined using exploratory structural equation modelling.

resultsfour dimensions underlying end-of-life preferences were identified: a medical dimension including aspects related to pain management and the maintenance of physical and cognitive abilities; a psychosocial dimension encompassing aspects related to social and spiritual support; a control dimension addressing the need to achieve some control and to put things in order before death; and a burden dimension reflecting wishes not to be a burden to others and to feel useful to others.

conclusionhighlighting the multi-dimensionality of end-of-life preferences, our results reaffirm the importance of a holistic and comprehensive approach to the end of life. Our results also provide a general framework that may guide the development of information and awareness campaigns on end-of-life care issues in the general population, informational materials and guidelines to support healthy individuals in end-of-life thinking and planning, and advance directive templates appropriate for healthy individuals.

Indexed as

Advance DirectivesTerminal CareCommunicationDeathHumansSurveys and QuestionnairesSwitzerlandend-of-life preferencesfactor analysisgeneral populationolder peoplequality of end of life

Identifiers

PMID36001482
PMCPMC9400912

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.