Evidence map›Paper›PMID 35996089›Full record

ArticleBMC geriatrics2022

Experiences of family caregivers of persons living with dementia with and without a smart- clothes assisted home nursing program during the heightened COVID-19 alert.

Ya-Li Sung, Huei-Ling Huang, Chung-Chih Lin, Teppo Kröger, Wen-Chuin Hsu, Jung-Lung Hsu, Yueh-E Lin, Yea-Ing L Shyu

Registry-linked trialAbstract read
In one paragraph

Article in BMC geriatrics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05063045 (Development and Preliminary Effects of Smart Cloth Care System for Persons With Dementia), which is not on this map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05063045 nacompletednot on this map

Development and Preliminary Effects of Smart Cloth Care System for Persons With Dementia

TypeinterventionalSponsorChang Gung Memorial HospitalRan2020 to 2023Enrolled60ConditionsDementia, Senile, Family MembersArmssmart-cloth assisted home nursing care
3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Ya-Li Sung *School of Nursing, Change Gung University, Guishan District, 259 Wenhua 1st Road, Taoyuan, 33302, Taiwan, ROC.
Huei-Ling Huang *Department of Gerontology and Health Care Management, College of Nursing, Chang Gung University of Science and Technology, Taoyuan, Taiwan, ROC.
Chung-Chih LinDepartment of Computer Science and Information Engineering, Chang Gung University, Taoyuan, Taiwan, ROC.
Teppo KrögerDepartment of Social Sciences and Philosophy, University of Jyväskylä, Jyväskylä, Finland.
Wen-Chuin HsuDementia Center, Department of Neurology, Taoyuan Chang Gung Memorial Hospital, Taoyuan, Taiwan, ROC.
Jung-Lung HsuDepartment of Neurology, New Taipei Municipal Tu Cheng Hospital, Chang Gung Memorial Hospital and Chang Gung University, New Taipei City, Taiwan, ROC.
Yueh-E LinDepartment of Nursing, Linkou Chang Gung Memorial Hospital, Taoyuan, Taiwan, ROC.
Yea-Ing L ShyuSchool of Nursing, Change Gung University, Guishan District, 259 Wenhua 1st Road, Taoyuan, 33302, Taiwan, ROC. yeaing@mail.cgu.edu.tw.

Funding

ALTERNATIVE SPLICING OF THE AMYLOID PRECURSOR PROTEIN GENEZ01AG000501 · NIA · AGING · PI HIGGINS, G A · 1992 to 1992
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6 · The paper itself

Abstract

backgroundThe COVID-19 pandemic has required restrictions of daily activities, which has been found to impact the lives of persons living with dementia (PLWDs) and their family caregivers, who have multiple care demands. The lack of relevant studies in Taiwan emphasized the need to explore the experiences of family caregivers of older PLWDs faced with the intensified restrictions to control the spread of COVID-19, and the impact of the availability of a smart-clothes home nursing program.

methodsThis qualitative study used semi-structured interviews with family caregivers of older PLWDs. Participants were recruited from dementia clinics of a medical center in northern Taiwan from a subset of a sample from a larger study on smart-clothes assisted home nursing care. A total of 12 family caregivers who participated in the original study were interviewed during the follow-up period; seven family caregivers of a PLWD wearing a smart-vest, which transmitted information to a home care nurse; five caregivers of a PLWD not wearing a smart-vest. Interviews were conducted by telephone because the conditions of the pandemic prevented face-to-face interviews. Recorded interviews were transcribed and analyzed using content analysis.

resultsInterview data showed family caregivers' felt the care recipient's health was compromised and functional conditions intensified as Covid-19-related pandemic restrictions increased. Specific concerns included a lack social interactions, decreased daily activity levels, loss of interest and lack of motivation for activities, increased mood and behavioral problems, a decline in physical function and an increase in health problems. Family caregivers were also impacted by these restrictions, with significant increases in severity of caregiver role strain, including feeling trapped, a lack of in-home support, profound powerlessness, and worries about the PLWD contracting the coronavirus. The smart-clothes assisted home nursing care program offered supplementary support to family caregivers by providing on-time interactions, helping them manage health problems, enhancing predictability of the care recipient's behaviors, and providing caregivers with emotional support.

conclusionsThe findings of this study support alternative care such as implementation of technology-assisted home health services to meet caregiver needs to facilitate family caregiving of PLWDs during the necessary restrictions in activities implemented during the COVID-19 pandemic.

trial registrationClinicalTrials.gov Protocol Record NCT05063045.

Indexed as

COVID-19DementiaCaregiversClothingHome NursingHumansPandemicsCOVID-19 pandemicDementiaFamily caregiversHomecare nursingSmart-clothes

Identifiers

PMID35996089
PMCPMC9395831

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.