ArticleFrontiers in psychiatry2022
"I'm in pain and I want help": An online survey investigating the experiences of tic-related pain and use of pain management techniques in people with tics and tic disorders.
Article in Frontiers in psychiatry, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
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Who cites it
14 citing papers in PubMed, 35 citations in OpenAlex.
- Healthcare utilisation and costs associated with poor access to diagnosis and treatment for children and young people with tic disorders.BMJ mental health · 2024Trial
- Prevalence of chronic pain among U.S. children with neurodevelopmental disorders.Pain reports · 2026Article
- Lessons learned from including Patient and Public Involvement members throughout research projects in Tic Disorder research.Research involvement and engagement · 2026Article
- Psychiatric Comorbidity, Tic Severity and Quality of Life in Adults with Tourette's Syndrome.Movement disorders clinical practice · 2026Article
- Development of a tic service model for children and young people in England: a Delphi study.BMJ open · 2026Article
- Experiences of self-identification, diagnosis and support for adults seeking a recognition of tic disorders in the United Kingdom.Primary health care research & development · 2026Article
- Tics, Tourette's and Related Muscle Pain in Children: A Review.Muscles (Basel, Switzerland) · 2026Review
- Patient Perspectives on Tic-Related Impairment: A Qualitative Examination.Neurology. Clinical practice · 2025Article
- Prevalence and Types of Chronic Pain among Insured Individuals with Tic Disorders.Movement disorders clinical practice · 2025Article
- Exploring Empowerment in Online Support Communities for People Living With Tic Disorders and Tourette Syndrome: Qualitative Survey Study of User Experiences.JMIR formative research · 2025Article
- Article
- Pain in Tourette Syndrome: A Comprehensive Review.Journal of child and adolescent psychopharmacology · 2025Review
- Coping with pain among adults with chronic tic disorders.Frontiers in psychology · 2025Article
- Patients' experience of accessing support for tics from primary care in the UK: an online mixed-methods survey.BMC health services research · 2023Article
Corrections and comments
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Authors and funding
3 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Objectives: Tic disorders (TDs) are complex neurological conditions characterized by involuntary, persistent vocalizations and motor movements called tics. Tics involve brief muscle movements and can impair many aspects of daily functioning and quality of life in patients - and their physical nature can cause pain. Understanding individuals' experiences of tic-related pain and pain management could help explore this under-researched area and identify additional support needs for this population. The aim of this study was to investigate experiences of pain and use of pain management techniques in people with tic disorders. Methods: An online survey consisting of multiple choice and open-ended questions exploring experiences of tic-related pain, help-seeking behavior for tic-related pain, and use of pain relief techniques for tic-related pain, was circulated online Results: One hundred eighty-one participants (16-71 years; 58.0% female) from 18 countries completed the online survey. Several aspects of tics were associated with pain, including the physical effort of motor tics ( Conclusions: Tic-related pain was reported to have a significant physical and psychological impact which impacted aspects of daily living in people with tic disorders. The findings add to limited research suggesting tic-related pain is a dominant issue for individuals with tic disorders, potentially impacting upon their quality of life. Increased understanding of tic-related pain and its influence may be helpful in the long-term management of tic disorders, both in terms of clinical management and patients' self-management.
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