Evidence map›Paper›PMID 35986416›Full record

ArticleTrials2022

HIAYA CHAT study protocol: a randomized controlled trial of a health insurance education intervention for newly diagnosed adolescent and young adult cancer patients.

Karely Mann, Austin R Waters, Elyse R Park, Giselle K Perez, Perla L Vaca Lopez, Heydon K Kaddas, Echo L Warner, Nicole Ray, Tomoko Tsukamoto, Karlie Allen and 4 more

Registry-linked trialAbstract readClinical Trial Protocol
In one paragraph

Article in Trials, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04448678 (Huntsman Intermountain Adolescent and Young Adult Cancer Care Program- Cancer Health Insurance Tool Study), which is not on this map. Cited by 24 papers.

0numbers the graph read from it
0cells of the map it votes in
24citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04448678 nacompletednot on this map

Huntsman Intermountain Adolescent and Young Adult Cancer Care Program- Cancer Health Insurance Tool Study

TypeinterventionalSponsorUniversity of UtahRan2020 to 2022Enrolled86ConditionsAdolescent, Young Adult, CancerArmsHealth Insurance Education Program (HIEP), Usual Care
3 · Its place in the literature

Who cites it

24 citing papers in PubMed.

  1. Trial
  2. Sources of informal financial support among adolescent and young adult cancer survivors: a mixed methods analysis from the HIAYA CHAT study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023
    Trial
  3. Article
  4. Article
  5. Review
  6. Journal of adolescent and young adult oncology · 2025
    Article
  7. Treatment-related adverse events as a source of financial hardship in young adults with breast cancer: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
    Article
  8. Article
  9. Development of a Navigator-Delivered Health Insurance Education Program for Hispanic and Latine Communities.Health education & behavior : the official publication of the Society for Public Health Education · 2025
    Article
  10. Article
  11. Article
  12. Article
  13. Article
  14. Article
  15. Article
  16. Article
  17. Article
  18. Article
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Karely MannCancer Control & Population Sciences, Huntsman Cancer Institute, University of Utah, Salt Lake City, UT, USA.ORCID http://orcid.org/0000-0002-6915-4409
Austin R WatersCancer Control & Population Sciences, Huntsman Cancer Institute, University of Utah, Salt Lake City, UT, USA.
Elyse R ParkHealth Promotion & Resiliency Intervention Research Program, Mongan Institute, Boston, MA, USA.
Giselle K PerezHealth Promotion & Resiliency Intervention Research Program, Mongan Institute, Boston, MA, USA.
Perla L Vaca LopezCancer Control & Population Sciences, Huntsman Cancer Institute, University of Utah, Salt Lake City, UT, USA.
Heydon K KaddasCancer Control & Population Sciences, Huntsman Cancer Institute, University of Utah, Salt Lake City, UT, USA.
Echo L WarnerCancer Control & Population Sciences, Huntsman Cancer Institute, University of Utah, Salt Lake City, UT, USA.
Nicole RayCancer Control & Population Sciences, Huntsman Cancer Institute, University of Utah, Salt Lake City, UT, USA.
Tomoko TsukamotoAdolescent and Young Adult Cancer Care Program, Intermountain Healthcare, Salt Lake City, UT, USA.
Karlie AllenAYA Patient Navigation Program, Huntsman Cancer Hospital, Salt Lake City, UT, USA.
Ben HaalandCancer Control & Population Sciences, Huntsman Cancer Institute, University of Utah, Salt Lake City, UT, USA.
Douglas B FairHuntsman Cancer Institute, University of Utah, Salt Lake City, UT, USA.
Mark A LewisAdolescent and Young Adult Cancer Care Program, Intermountain Healthcare, Salt Lake City, UT, USA.
Anne C KirchhoffCancer Control & Population Sciences, Huntsman Cancer Institute, University of Utah, Salt Lake City, UT, USA. Anne.Kirchhoff@hci.utah.edu.

Funding

Cancer Care Quality Training ProgramT32CA116339 · NCI · UNIV OF NORTH CAROLINA CHAPEL HILL · PI ETHAN M. BASCH, Stephanie Brooke Wheeler · 2018 to 2026
$3.0M
Improving Health Insurance Experiences for Adolescent and Young Adult Cancer PatientsR01CA242729 · NCI · UNIVERSITY OF UTAH · PI KIRCHHOFF, ANNE C · 2019 to 2021
$1.1M
NCI NIH HHS R01 CA242729NCI NIH HHS T32 CA116339
6 · The paper itself

Abstract

backgroundFor adolescent and young adult (AYA) cancer patients aged 18 to 39 years, health insurance literacy is crucial for an effective use of the health care system. AYAs often face high out-of-pocket costs or have unmet health care needs due to costs. Improving health insurance literacy could help AYAs obtain appropriate and affordable health care. This protocol illustrates a randomized controlled trial testing a virtual health insurance education intervention among AYA patients.

methodsThis is a two-arm multisite randomized controlled trial. A total of 80 AYAs diagnosed with cancer in the Mountain West region will be allocated to either usual navigation care or tailored health insurance education intervention with a patient navigator that includes usual care. All participants will complete a baseline and follow-up survey 5 months apart. The primary outcomes are feasibility (number enrolled and number of sessions completed) and acceptability (5-point scale on survey measuring satisfaction of the intervention). The secondary outcomes are preliminary efficacy measured by the Health Insurance Literacy Measure and the COmprehensive Score for financial Toxicity. DISCUSSION: This trial makes a timely contribution to test the feasibility and acceptability of a virtual AYA-centered health insurance education program.

trial registrationClinicalTrials.gov NCT04448678. Registered on June 26, 2020.

Indexed as

Health LiteracyNeoplasmsPatient NavigationAdolescentAdultHumansInsurance, HealthRandomized Controlled Trials as TopicSurveys and QuestionnairesYoung AdultAdolescent and young adultCancerHealth insuranceHealth insurance literacyPatient navigationPilot randomized controlled trialVirtual intervention

Identifiers

PMID35986416
PMCPMC9388989

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.