ArticleJournal of the American Medical Informatics Association : JAMIA2022
Maybe they had a bad day: how LGBTQ and BIPOC patients react to bias in healthcare and struggle to speak out.
Article in Journal of the American Medical Informatics Association : JAMIA, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
31 citing papers in PubMed, 61 citations in OpenAlex.
- The Role of Healthcare-Related Experiences in Willingness and Preference for Long-Acting Injectable PrEP (LAI-PrEP) Among Transfeminine People in the United States.AIDS and behavior · 2026Article
- Cardiovascular Health Across Gender Identities: Life's Essential 8 in the PRIDE Study.Journal of the American Heart Association · 2026Article
- Impact of patient-provider gender concordance on mental health outcomes: scoping review.BJPsych open · 2026Review
- Improving Diagnosis: Evaluation of Diagnostic Experiences Classified as Problems, Mistakes, or Both by Patients and Care Partners From a Nationally Representative Survey.Medical care · 2026Article
- Mental health and access to healthcare among racialized and non-racialized migrant sexual and gender minority youth in Canada: findings from a cross-sectional survey conducted during COVID-19.BMC public health · 2026Article
- Health Equity Analysis of Awareness and Use of GetCheckedOnline, British Columbia's Digital Intervention for Sexually Transmitted and Blood-Borne Infection Testing in 5 Urban, Suburban, and Rural Communities: Cross-Sectional Survey Study.Journal of medical Internet research · 2026Article
- "It's very difficult to navigate the health care system": structural barriers and the need for affirming care for LGBTQ+ young adults.BMC health services research · 2026Article
- Bias at the Bedside: A Comprehensive Review of Racial, Sexual, and Gender Minority Experiences and Provider Attitudes in Healthcare.Healthcare (Basel, Switzerland) · 2026Review
- Sexual minority (LGBQ+) women's experiences of accessing addiction services: a qualitative study.Frontiers in public health · 2026Article
- Evaluating the National Academy of Science Engineering and Medicine's recommended sexual orientation and gender identity questions: community perceptions.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Implementing MyChart-Driven Sexual Orientation and Gender Identity Data Collection at Three Comprehensive Cancer Center Clinics.Journal of the National Comprehensive Cancer Network : JNCCN · 2025Article
- Article
- The Dissectionality of Care in the U.S.: A Scoping Review in Healthcare of Implicit Bias, Perceived Discrimination, and Minority Stress Among Sexual and Gender Minorities.Archives of sexual behavior · 2025Article
- "I don't think I have been out of fight or flight. Ever." Transgender people's experiences in inpatient psychiatric treatment.International journal of nursing studies · 2025Article
- Recommendations for promoting affirming healthcare for gender and sexual minorities with intersecting marginalized identities.BMC health services research · 2025Article
- Risk of impairment in cognitive instrumental activities of daily living for sexual and gender minority adults with reported Parkinson's disease.The Clinical neuropsychologist · 2025Article
- Toward information resilience: Applying intersectionality to the HIV/AIDS information practices of Black sexual minority men.Journal of the Association for Information Science and Technology · 2025Article
- Systemic transphobia and ongoing barriers to healthcare for transgender and nonbinary people: A historical analysis of #TransHealthFail.PLOS digital health · 2025Article
- Nurse judgements of hospitalized patients' safety concerns are affected by patient, nurse and event characteristics: A factorial survey experiment.Journal of clinical nursing · 2025Article
- Sexual and Gender Diverse Healthcare Navigation Model: A Community-Participatory Delphi Adaptation of the Transitional Care Model for Sexual and Gender Diverse Individuals.Journal of homosexuality · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
11 authors at 3 institutions in 1 country.
Funding
Abstract
objectivePeople who experience marginalization, including Black, Indigenous, People of Color (BIPOC) and Lesbian, Gay, Bisexual, Transgender, Queer, Plus (ie, all other marginalized genders and sexual orientations) people (LGBTQ+) experience discrimination during healthcare interactions, which negatively impacts patient-provider communication and care. Yet, scarce research examines the lived experience of unfair treatment among patients from marginalized groups to guide patient-centered tools that improve healthcare equity. MATERIALS AND
methodsWe interviewed 25 BIPOC and/or LGBTQ+ people about their experiences of unfair treatment and discrimination when visiting healthcare providers. Through thematic analysis, we describe participants' immediate reactions and longer-term consequences of those experiences.
resultsWe identified 4 ways that participants reacted to discrimination in the moment: Fighting, Fleeing, Excusing, and Working Around Bias. Long-term consequences reflect 6 ways they coped: Delaying or Avoiding Care, Changing Healthcare Providers, Self-prescribing, Covering Behaviors, Experiencing Health Complications, and Mistrusting Healthcare Institutions. DISCUSSION: By describing how patients react to experiences of unfair treatment and discrimination, our findings enhance the understanding of health disparities as patients cope and struggle to speak out.To combat these problems, we identify 3 future directions for informatics interventions that improve provider behavior, support patient advocacy, and address power dynamics in healthcare.
conclusionsBIPOC and LGBTQ+ patients' perspectives on navigating unfair treatment and discrimination in healthcare offers critical insight into their experiences and long-term consequences of those experiences. Understanding the circumstances and consequences of unfair treatment, discrimination, and the impact of bias through this patient-centered lens is crucial to inform informatics technologies that promote health equity.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.