ArticleJournal of the National Cancer Institute2022
Assessment of Caregivers' Burden When Caring for Patients With Pancreatic and Periampullary Cancer.
Article in Journal of the National Cancer Institute, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
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Who cites it
13 citing papers in PubMed, 23 citations in OpenAlex.
- Trajectories of health care contact days experienced by decedents who underwent curative-intent surgery for pancreatic cancer.The oncologist · 2026Article
- Accuracy of patient, care partner, and clinician health care contact day recall.The oncologist · 2026Article
- Assessing the Unmet Social Needs and Financial Hardship of Cancer Caregivers: A Scoping Review.Current oncology reports · 2025Article
- Patient-, care partner-, and clinician-proposed solutions to address the time toxicity of cancer care.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Supportive Care Needs and Related Interventions in Patients with Pancreatic Cancer and Their Informal Caregivers: A Scoping Review.Journal of gastrointestinal cancer · 2025Article
- Article
- Economic costs of family caregiving for persons with advanced stage cancer: a longitudinal cohort study.Journal of cancer survivorship : research and practice · 2025Article
- Article
- Caregiver Burden of Palliative Cancer Patients: A Cross-Cultural Perspective.Florence Nightingale journal of nursing · 2024Article
- Closing the Caregiving Gap: Considerations for Pancreatic and Periampullary Cancer Caregivers.JCO oncology practice · 2023Article
- Profile of the Postoperative Care Provided for Patients With Pancreatic and Periampullary Cancers by Family and Unpaid Caregivers.JCO oncology practice · 2023Article
- High out‑of‑pocket spending and financial hardship at the end of life among cancer survivors and their families.Israel journal of health policy research · 2023Article
- Unpaid Caregiving: What are the Hidden Costs?Journal of the National Cancer Institute · 2022Article
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Authors and funding
18 authors at 6 institutions in 1 country.
Funding
Abstract
backgroundFamily and other unpaid caregivers play an active role in the recovery of individuals with pancreatic and periampullary cancer after pancreatectomy. However, little is known about caregivers' experiences and how to better support them.
methodsCaregivers accompanying patients to 1-month postpancreatectomy visits at 3 hospitals completed an electronic survey between November 2018 and February 2020. We examine measures of absenteeism and work productivity loss among the subset of caregivers who reported working for pay and comparatively assess caregiver experiences by employment status. All analyses were performed as 2-sided tests.
resultsOf 265 caregivers approached for study participation, 240 (90.6%) enrolled. Caregivers were primarily female (70.8% female, 29.2% male) and spouses (58.3%) or adult children (25.8%) of patients, with a median age of 60 years. Of the 240 caregivers included in the study, 107 (44.6%) worked for pay. Nearly half (44.4%) of working caregivers reported being absent from work because of caregiving amounting to a 14% loss in work hours. While at work, 58.9% of working caregivers reported increased work difficulty as a result of caregiving. Taken together, an estimated 59.7% loss in work productivity was experienced because of caregiving in the month following pancreatectomy. After adjustment for sociodemographic factors, working (vs nonworking) caregivers reported increased financial (odds ratio [OR] = 2.32; P = .04) and emotional (OR = 1.93; P = .04) difficulties and daily activity restrictions (OR = 1.85; P = .048).
conclusionsWorking caregivers of patients with pancreatic and periampullary cancer experience negative impacts on work and productivity, and caregiving-related financial and emotional difficulties may be amplified. This study highlights the need for workplace policies to support unpaid cancer caregiving.
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